hi,
sorry i haven't been around, been busy with difficult child tutors, my new doctor visits etc.
so, something isnt' sitting right with-me and this new diagnosis. this is why.......
there is a huge controversy over lyme disease vrs. ms diagnosis. i have read up and it's HUGE.
I do have 11 brain lesions, my thinking def. is off, i have memory issues bigtime, i'm beginning to stutter now, a whole bunch of other symptoms.
this is why its' not sitting right with-me.
last year my joints began to swell and that is what triggered the search into what is wrong with-jen.
it was followed up by an e.r. visit upon return from honeymoon due to extreme pain, whereas i was given a lyme's test among other blood work, and the western blot. which is used to confirm lyme's if the elisa test is positive.
I was told yes you have lyme's. I than went to an llmd it's called that speciailizes in it. i was exhausted, fatigued etc. he said your depressed there is no way you have lyme's disease. He also said i think it'sa lung disease.
so i said i'm not depressed i just got back from mexico, i'm simply exhausted. i went to my gp whereas he was like what?? so he sent me for a chest xray immediately. came back lungs are just fine.
he than ran more blood for similar disease all negative. all auto immune.
so he than said go to a neurologist, i had to deal with-difficult child all year so this was put off.
returned from portland extreme pain again, went to e.r. couldn't hack it. they did another lyme's test positive elisa again and again negative western blot.
so neuro, than brain mri lesions found, ms diagnosis. i'm not in ms denial truly. yet something just keeps going into my mind and saying look further. something isnt' right. i could be wrong, could be the level of brain damage i now have.
yet my mind keeps going back to the fact that with ms joints do not swell. second that after working in my yard cutting down trees for hours my joints swelled prior to wedding which was my signal hey something's up.
so, i'm off for more brain mri's tmrw with contrast that stupid metal injection or whatever it is. on both my spine and my brain.
someone check me here? husband ofcourse thinks i'm nuts. yet i'm finding good reason in my mind to say something isn't quite jiving the right way and i could have lyme's disease it's eating my alive literally from inside out and if that stupid dr hadn't said no you dont' i'd be well today having recvd. the antiobotic drugs.
thoughts? sorry so long. am i nuts here or does this seem like valid concern?
sorry i haven't been around, been busy with difficult child tutors, my new doctor visits etc.
so, something isnt' sitting right with-me and this new diagnosis. this is why.......
there is a huge controversy over lyme disease vrs. ms diagnosis. i have read up and it's HUGE.
I do have 11 brain lesions, my thinking def. is off, i have memory issues bigtime, i'm beginning to stutter now, a whole bunch of other symptoms.
this is why its' not sitting right with-me.
last year my joints began to swell and that is what triggered the search into what is wrong with-jen.
it was followed up by an e.r. visit upon return from honeymoon due to extreme pain, whereas i was given a lyme's test among other blood work, and the western blot. which is used to confirm lyme's if the elisa test is positive.
I was told yes you have lyme's. I than went to an llmd it's called that speciailizes in it. i was exhausted, fatigued etc. he said your depressed there is no way you have lyme's disease. He also said i think it'sa lung disease.
so i said i'm not depressed i just got back from mexico, i'm simply exhausted. i went to my gp whereas he was like what?? so he sent me for a chest xray immediately. came back lungs are just fine.
he than ran more blood for similar disease all negative. all auto immune.
so he than said go to a neurologist, i had to deal with-difficult child all year so this was put off.
returned from portland extreme pain again, went to e.r. couldn't hack it. they did another lyme's test positive elisa again and again negative western blot.
so neuro, than brain mri lesions found, ms diagnosis. i'm not in ms denial truly. yet something just keeps going into my mind and saying look further. something isnt' right. i could be wrong, could be the level of brain damage i now have.
yet my mind keeps going back to the fact that with ms joints do not swell. second that after working in my yard cutting down trees for hours my joints swelled prior to wedding which was my signal hey something's up.
so, i'm off for more brain mri's tmrw with contrast that stupid metal injection or whatever it is. on both my spine and my brain.
someone check me here? husband ofcourse thinks i'm nuts. yet i'm finding good reason in my mind to say something isn't quite jiving the right way and i could have lyme's disease it's eating my alive literally from inside out and if that stupid dr hadn't said no you dont' i'd be well today having recvd. the antiobotic drugs.
thoughts? sorry so long. am i nuts here or does this seem like valid concern?