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General Parenting
A few questions re: changing a Pervasive Developmental Disorder (PDD) diagnosis
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<blockquote data-quote="susiestar" data-source="post: 193988" data-attributes="member: 1233"><p>I think you have made some sound choices. I odn't know if your phone call to the judge will have them be able to find a therapist who is truly trained/educated in Autism Spectrum Disorders (ASD) to do your difficult child 2's evaluation. I think we are seeing (across the board) more of every kind of doctor who SAY they are educated on Autism Spectrum Disorders (ASD) but truly are NOT, or only have a weekend seminar in Autism Spectrum Disorders (ASD) but add it to their list of qualifications so that they appeal to a broader range of patients. I know that we ahve been caught off guard by a few "experts" who have read almost nothing on Autism Spectrum Disorders (ASD) and have very little training, but because they ahve had ONE weekend of training are billing themselves as "qualified".</p><p> </p><p>As MWM said, this is not one of the older, more established disorders. It is relatively new, as far as mental disorders being diagnosis'ed today go, and therefore we are seeing more people claiming to be knowledgeable than are truly knowledgeable. </p><p> </p><p>Taking Pervasive Developmental Disorder (PDD) off of your child's list of diagnosis will NOT open up new therapy or treatment options, it will close them. It will mean your child is LESS able to get help.. Partly because no one will know what is wrong and partly because there ahs been a HUGE push to provide funds for those with Autism Spectrum Disorders (ASD) and if that isn't on his diagnosis list, he isn't eligible for many things. Look at all the grief Shari has had getting her weegfg into a social skills class. The head honcho at hte devel pediatrician says her weegfg hasn't got Autism Spectrum Disorders (ASD), even though the other docs say he does. So her son ca't attend these much needed social skills sessions. </p><p> </p><p>Keep a list of the various Pervasive Developmental Disorder (PDD) traits, the aspergers traits, the plain autistic traits, and list each day all of the traits you have seen. THIS will help if you have to go up against any of the docs who want to take Pervasive Developmental Disorder (PDD) off of your son's list of descriptors.</p><p> </p><p>Be SURE that school doesn't get wind of taking this off his list. THEY are getting HUGE sums from various groups for identifying and providing resources for kids with Pervasive Developmental Disorder (PDD) and other Autism Spectrum Disorders (ASD) related problems.</p></blockquote><p></p>
[QUOTE="susiestar, post: 193988, member: 1233"] I think you have made some sound choices. I odn't know if your phone call to the judge will have them be able to find a therapist who is truly trained/educated in Autism Spectrum Disorders (ASD) to do your difficult child 2's evaluation. I think we are seeing (across the board) more of every kind of doctor who SAY they are educated on Autism Spectrum Disorders (ASD) but truly are NOT, or only have a weekend seminar in Autism Spectrum Disorders (ASD) but add it to their list of qualifications so that they appeal to a broader range of patients. I know that we ahve been caught off guard by a few "experts" who have read almost nothing on Autism Spectrum Disorders (ASD) and have very little training, but because they ahve had ONE weekend of training are billing themselves as "qualified". As MWM said, this is not one of the older, more established disorders. It is relatively new, as far as mental disorders being diagnosis'ed today go, and therefore we are seeing more people claiming to be knowledgeable than are truly knowledgeable. Taking Pervasive Developmental Disorder (PDD) off of your child's list of diagnosis will NOT open up new therapy or treatment options, it will close them. It will mean your child is LESS able to get help.. Partly because no one will know what is wrong and partly because there ahs been a HUGE push to provide funds for those with Autism Spectrum Disorders (ASD) and if that isn't on his diagnosis list, he isn't eligible for many things. Look at all the grief Shari has had getting her weegfg into a social skills class. The head honcho at hte devel pediatrician says her weegfg hasn't got Autism Spectrum Disorders (ASD), even though the other docs say he does. So her son ca't attend these much needed social skills sessions. Keep a list of the various Pervasive Developmental Disorder (PDD) traits, the aspergers traits, the plain autistic traits, and list each day all of the traits you have seen. THIS will help if you have to go up against any of the docs who want to take Pervasive Developmental Disorder (PDD) off of your son's list of descriptors. Be SURE that school doesn't get wind of taking this off his list. THEY are getting HUGE sums from various groups for identifying and providing resources for kids with Pervasive Developmental Disorder (PDD) and other Autism Spectrum Disorders (ASD) related problems. [/QUOTE]
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A few questions re: changing a Pervasive Developmental Disorder (PDD) diagnosis
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