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A little funny, follow up about DF (long) okay when are they not?
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<blockquote data-quote="Star*" data-source="post: 345833" data-attributes="member: 4964"><p>Judi - </p><p></p><p>I believe you are ABSOLUTELY correct. Sorry it took so long to get back to you (Been playing in the snow, dealing with Dude et al) okay - so here's the thing in a nutshell. When he was IN pain for years? This PMD took his good old time about helping us at all. We spent countless nights without sleep,countless nights at the ER and I mean countless -even the nurses are like OMG when they open his file to the point that when he would go to the ER seeking help - it was almost like a drug addict seeking behavior. The screams, contortions,fits, tears, falling to the floor, blood pressure said otherwise - you can't fake BiPolar (BP). </p><p></p><p>So eventually the ER doctor contacted the PMD and said "Hey look, this guy has been here at least 2x a week every other week and I'm curious why you have him on Vicodin" , or whatever the cocktail o' the day was. The PMD's standard answer was that DF walks like a biker, looks like a biker, and must be a biker with drug seeking behavior. In other words if DF had cut his hair, worn a pair of khaki trousers, a long sleve dress shirt, Bass boat shoes and had the same pain? He'd have been given scads of pain medications years earlier. ER docs words not ours. We were furious. </p><p></p><p>So DF had a talk with PMD. They agreed to start Oxycodone with a stipulation - urine tests. DF assured PMD that he was NOT, is NOT and is not seeking drugs other than for pain management - so the PMD agreed finally. Oxycodone was a nightmare. HE slept, he ate, he slept, he ate - he was a mean, mouthy, opinionated person and as I read the potential side effects of this drug? I was scared for the what if's. Moreso than I am with methadone. Then genius that the PMD is? He offered to put him on Gabapentin. I looked it up and was just as confused as ever - YES - Gabapentin. </p><p>From there we said UM no.....There have been trials of about twenty medications before the Oxycodone - Tylox was one of them that if they ever give to him again? I'll leave. It makes DF (my avatar x 10) and I won't be around to see if it happens again. </p><p></p><p>So when the doctor worked his way up to Methadone after nearly seven years of trials and pain, ER visits, OUR quality of life being in the toilet, our savings depleted, our home? Well what's left of it - falling down around us completely - and nothing has been repaired to the point of embarrassment beyond explanation? (You just can't even imagine) He finally agreed to Methadone. Low dose at first. Within a week? He had relief for the first time in almost seven years. Manageable pain - see they botched his surgery, he got a MRSA at the hospital - and due to that? He had to have all his teeth pulled without anesthesia (27) it's just been horrible- we had nurses at our house for three months every day. He has adhesions too. He's gained weight - he's depressed. It's been the toughest to watch him go downhill not being able to do almost anything and not feel like he's contributing. </p><p></p><p>So when they said Morphine? He said - Well...I'll try it. But this guy just did Methadone today - and Morphine tomorrow but nearly 1/12th the strength less. BIG no no. Even the new PMD said - this is not good. He's questioning the practice of the old PMD. We're not suing - we're not writing the medical board or anything like that - we're just upset that he's been treated like dirt for years. The new doctor isn't giving him the full prescription of Methadone either (I'm glad) he's 1/2ing it. He said he'll see since he's been off of the full strength for 2 months if he can manage. I'm okay with that. DF is in pain again - but we're hoping it's 'residual' or what the PMD calls 'ghost' pain. (I get what he's saying I think.) </p><p></p><p>I don't know what would have been better. Actually I do, for them to have done the surgery right to begin with. For the hospital to have been clean and for the nurses to have not allowed a surgery patient to sit in a filthy room in his own throw up for 8 hours to being with. Maybe in other states it's a little more up to date but here in SC it's been nothing but horror stories. He needs 2 knee replacements and we won't have them done here. </p><p></p><p>Your knowledge is appreciated and incredible. I do worry - I'm just not sure what else there is out there he could take that would eliminate or lessen the pain and not harm him. Neither does he. We're open for suggestions though. Anything but Methadone would be welcome. If you can think of anything let us know. We're open to suggestions all the time. Really really - </p><p></p><p>Thanks a bunch a bunch a bunch...I'm really impressed with your knowledge...keep it coming because you never know when you will have something that I need, or someone else does. Weighing all options is good. </p><p></p><p>Hugs & Love </p><p>Star</p></blockquote><p></p>
[QUOTE="Star*, post: 345833, member: 4964"] Judi - I believe you are ABSOLUTELY correct. Sorry it took so long to get back to you (Been playing in the snow, dealing with Dude et al) okay - so here's the thing in a nutshell. When he was IN pain for years? This PMD took his good old time about helping us at all. We spent countless nights without sleep,countless nights at the ER and I mean countless -even the nurses are like OMG when they open his file to the point that when he would go to the ER seeking help - it was almost like a drug addict seeking behavior. The screams, contortions,fits, tears, falling to the floor, blood pressure said otherwise - you can't fake BiPolar (BP). So eventually the ER doctor contacted the PMD and said "Hey look, this guy has been here at least 2x a week every other week and I'm curious why you have him on Vicodin" , or whatever the cocktail o' the day was. The PMD's standard answer was that DF walks like a biker, looks like a biker, and must be a biker with drug seeking behavior. In other words if DF had cut his hair, worn a pair of khaki trousers, a long sleve dress shirt, Bass boat shoes and had the same pain? He'd have been given scads of pain medications years earlier. ER docs words not ours. We were furious. So DF had a talk with PMD. They agreed to start Oxycodone with a stipulation - urine tests. DF assured PMD that he was NOT, is NOT and is not seeking drugs other than for pain management - so the PMD agreed finally. Oxycodone was a nightmare. HE slept, he ate, he slept, he ate - he was a mean, mouthy, opinionated person and as I read the potential side effects of this drug? I was scared for the what if's. Moreso than I am with methadone. Then genius that the PMD is? He offered to put him on Gabapentin. I looked it up and was just as confused as ever - YES - Gabapentin. From there we said UM no.....There have been trials of about twenty medications before the Oxycodone - Tylox was one of them that if they ever give to him again? I'll leave. It makes DF (my avatar x 10) and I won't be around to see if it happens again. So when the doctor worked his way up to Methadone after nearly seven years of trials and pain, ER visits, OUR quality of life being in the toilet, our savings depleted, our home? Well what's left of it - falling down around us completely - and nothing has been repaired to the point of embarrassment beyond explanation? (You just can't even imagine) He finally agreed to Methadone. Low dose at first. Within a week? He had relief for the first time in almost seven years. Manageable pain - see they botched his surgery, he got a MRSA at the hospital - and due to that? He had to have all his teeth pulled without anesthesia (27) it's just been horrible- we had nurses at our house for three months every day. He has adhesions too. He's gained weight - he's depressed. It's been the toughest to watch him go downhill not being able to do almost anything and not feel like he's contributing. So when they said Morphine? He said - Well...I'll try it. But this guy just did Methadone today - and Morphine tomorrow but nearly 1/12th the strength less. BIG no no. Even the new PMD said - this is not good. He's questioning the practice of the old PMD. We're not suing - we're not writing the medical board or anything like that - we're just upset that he's been treated like dirt for years. The new doctor isn't giving him the full prescription of Methadone either (I'm glad) he's 1/2ing it. He said he'll see since he's been off of the full strength for 2 months if he can manage. I'm okay with that. DF is in pain again - but we're hoping it's 'residual' or what the PMD calls 'ghost' pain. (I get what he's saying I think.) I don't know what would have been better. Actually I do, for them to have done the surgery right to begin with. For the hospital to have been clean and for the nurses to have not allowed a surgery patient to sit in a filthy room in his own throw up for 8 hours to being with. Maybe in other states it's a little more up to date but here in SC it's been nothing but horror stories. He needs 2 knee replacements and we won't have them done here. Your knowledge is appreciated and incredible. I do worry - I'm just not sure what else there is out there he could take that would eliminate or lessen the pain and not harm him. Neither does he. We're open for suggestions though. Anything but Methadone would be welcome. If you can think of anything let us know. We're open to suggestions all the time. Really really - Thanks a bunch a bunch a bunch...I'm really impressed with your knowledge...keep it coming because you never know when you will have something that I need, or someone else does. Weighing all options is good. Hugs & Love Star [/QUOTE]
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A little funny, follow up about DF (long) okay when are they not?
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