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Am feeling a bit fearful...
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<blockquote data-quote="timer lady" data-source="post: 102658" data-attributes="member: 393"><p>this morning. Just need an ear or a shoulder to lean on if you have one available.</p><p></p><p>I spent since Friday evening dead asleep. I've had my moments of being alert - never quite awake. husband told me that he's worried over the level of confusion I present along with the weakness. My hearing seems to be worsening as well - even with my aids in I struggle to "hear" what is being said. </p><p></p><p>He's researched the Susac's syndrome & apparently there is dementia listed as a symptom; he's concerned for me. I purposely avoided any research until I felt stronger.</p><p></p><p>In the meantime, I remember little if any of the past, what is it, 36 hours. More than likely it's the sleep with the medications thrown in....</p><p></p><p>I told husband that I didn't want to know the details of Susac's at this point. I'm angry & frightened this morning. I want to live in the "cocoon" of treatment letting the medical professionals & husband take care of the details. </p><p></p><p>My brain cannot seem to handle details. They hurt my head. I need a paintbrush for the moments I'm awake; a decent pillow when my body is pushing me to sleep.</p><p></p><p>Thanks for listening to my early morning ramblings ~ my HMJ is freshly brewed & it's time to pour a cup.</p></blockquote><p></p>
[QUOTE="timer lady, post: 102658, member: 393"] this morning. Just need an ear or a shoulder to lean on if you have one available. I spent since Friday evening dead asleep. I've had my moments of being alert - never quite awake. husband told me that he's worried over the level of confusion I present along with the weakness. My hearing seems to be worsening as well - even with my aids in I struggle to "hear" what is being said. He's researched the Susac's syndrome & apparently there is dementia listed as a symptom; he's concerned for me. I purposely avoided any research until I felt stronger. In the meantime, I remember little if any of the past, what is it, 36 hours. More than likely it's the sleep with the medications thrown in.... I told husband that I didn't want to know the details of Susac's at this point. I'm angry & frightened this morning. I want to live in the "cocoon" of treatment letting the medical professionals & husband take care of the details. My brain cannot seem to handle details. They hurt my head. I need a paintbrush for the moments I'm awake; a decent pillow when my body is pushing me to sleep. Thanks for listening to my early morning ramblings ~ my HMJ is freshly brewed & it's time to pour a cup. [/QUOTE]
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Am feeling a bit fearful...
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