Shari--
in my opinion it makes no difference the "reputation" of the doctor. Sometimes, even the best docs get stuck....
Years ago, I was struggling with digestive issues, couldn't eat, felt terrible all the time, it was awful...so I went to see a doctor that was highly recommended. He took one look at me and diagnosed "Diabetes". Well, the blood tests did not confirm diabetes. Instead of looking into other answers, the doctor swore up and down that the test must have been incorrect--so he ordered another round of bloodwork. Again--no diabetes. At my third visit, the doctor seemed aggravated with me....and this time, ordered bloodwork after fasting and also with fasting/glucose. STILL negative for diabetes....and yet, that seemed what the doctor was determined to treat me for.
Finally, I just had to switch doctors. I had to find someone who was willing to listen and be open to finding the correct diagnosis--regardless of their reputation as a "great doctor".
by the way--I still don't have diabetes. Good thing I did not let that nut treat me for it!!
Sounds like you need to move on before your little one gets any more treatment for a condition he does NOT have.
Best of luck!
--DaisyF