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<blockquote data-quote="Ktllc" data-source="post: 526790" data-attributes="member: 11847"><p>Oh, Malika, I'm so sorry. Really. I wish I could give you some advise on where to go. If it makes you feel better, over here V is getting more and more diagnosis but not really more help/interventions. I had posted about the terrible reality that almost everything will depends on MY interventions and teachings.</p><p>I just want to smack that Doctor. But what good would it do? </p><p>Many times, I really had to think hard about the kind of help I am wishing for. For me, it appears that I mainly want people to acknowledge that somethings is off. I want people to hear me and take my opinion into account. A few examples: teachers would just accept my advice, visitors (family or friends) would accept that our household runs differently and controling the environment is key to V's well-being. </p><p>Malika, you're going to have to be strong and accept that YOU are is biggest help. YOU can do it and don't need anyone's approval.</p><p>You are becoming better everyday at "reading" J. No one can take this away. </p><p>Have you read the out-of-sync child? If not, I suggest you read it. </p><p>V does not self regulate, so I have to do it for him. Right now, he is napping but a lot of factor needs to be in place for him to fall a sleep: relaxing music (ie: spirit of the earth), close the curtains, no other noise (even unplug the filter in the fish tank), and he goes in his cocoon (look up cocoon swing, mine is home made with a simple t-shirt fabric). With ALL that, he is able to sleep and hopefully not be too overstimulated later in the afternoon. </p><p>Go home, but don't give up! We are all here for you.</p></blockquote><p></p>
[QUOTE="Ktllc, post: 526790, member: 11847"] Oh, Malika, I'm so sorry. Really. I wish I could give you some advise on where to go. If it makes you feel better, over here V is getting more and more diagnosis but not really more help/interventions. I had posted about the terrible reality that almost everything will depends on MY interventions and teachings. I just want to smack that Doctor. But what good would it do? Many times, I really had to think hard about the kind of help I am wishing for. For me, it appears that I mainly want people to acknowledge that somethings is off. I want people to hear me and take my opinion into account. A few examples: teachers would just accept my advice, visitors (family or friends) would accept that our household runs differently and controling the environment is key to V's well-being. Malika, you're going to have to be strong and accept that YOU are is biggest help. YOU can do it and don't need anyone's approval. You are becoming better everyday at "reading" J. No one can take this away. Have you read the out-of-sync child? If not, I suggest you read it. V does not self regulate, so I have to do it for him. Right now, he is napping but a lot of factor needs to be in place for him to fall a sleep: relaxing music (ie: spirit of the earth), close the curtains, no other noise (even unplug the filter in the fish tank), and he goes in his cocoon (look up cocoon swing, mine is home made with a simple t-shirt fabric). With ALL that, he is able to sleep and hopefully not be too overstimulated later in the afternoon. Go home, but don't give up! We are all here for you. [/QUOTE]
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