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The Watercooler
anyone got info on childhood epilepsy?
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<blockquote data-quote="Hound dog" data-source="post: 408206" data-attributes="member: 84"><p>I ditto Sue!</p><p></p><p>I only bought into the "live with it" deal because docs gave me no choice in the matter as they all refused to treat................I'm thinking Travis' severe reaction to phenobarbitol was part of that.......but I do know they seem very hesitant to treat infants and young children.</p><p></p><p>An excellent pediatric neuro is a must. If mom doesn't feel comfortable with him, go for a 2nd opinion, but make sure she finds someone knowledgeable and she can trust to help her make decisions.</p><p></p><p>Even at 12 they were thinking to still wait and see...........until I found a really good neuro who did a sleep deprived EEG which shows that unmedicated the boys brain is nearly constantly in seizure state, and 30 yrs as a neuro he'd never ever seen one like it before.</p><p></p><p>Educating herself is the key. Knowing when to call for help and when to get them back into neuro is important. I was lucky, I could keep in contact with the neuro via email and he checked it constantly which meant all I had to do if a problem came up was mail him and within 5 mins I always had an answer, if not from him personally than from his RN who also monitored it.</p></blockquote><p></p>
[QUOTE="Hound dog, post: 408206, member: 84"] I ditto Sue! I only bought into the "live with it" deal because docs gave me no choice in the matter as they all refused to treat................I'm thinking Travis' severe reaction to phenobarbitol was part of that.......but I do know they seem very hesitant to treat infants and young children. An excellent pediatric neuro is a must. If mom doesn't feel comfortable with him, go for a 2nd opinion, but make sure she finds someone knowledgeable and she can trust to help her make decisions. Even at 12 they were thinking to still wait and see...........until I found a really good neuro who did a sleep deprived EEG which shows that unmedicated the boys brain is nearly constantly in seizure state, and 30 yrs as a neuro he'd never ever seen one like it before. Educating herself is the key. Knowing when to call for help and when to get them back into neuro is important. I was lucky, I could keep in contact with the neuro via email and he checked it constantly which meant all I had to do if a problem came up was mail him and within 5 mins I always had an answer, if not from him personally than from his RN who also monitored it. [/QUOTE]
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anyone got info on childhood epilepsy?
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