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<blockquote data-quote="susiestar" data-source="post: 390667" data-attributes="member: 1233"><p>Today the doctor was here for a couple minutes. He said the EEG was "great" whatever that means, and he wants the PT and Occupational Therapist (OT) people to work with Jess. They have a lot of activities planned by the child life people. The therapy dogs came in today and were really cute and fun. One of the dog's owners was really snotty though. ALL of the kids had already held her dog and I asked if I could. She flat out said "No, you aren't a child and we aren't here for you. You can just go away." I was floored. So far she has been the only rude person we have encountered. </p><p> </p><p>Jess went all the way downstairs to the cafeteria to look around, then to the library on another floor, then she went to the dog therapy for an hour (just time to play with the 3 dogs). She was really tired from it, and got a migraine. The child life person tried to push her into going to another group but Jess held her ground and stayed in the room. I could see she was exhausted because she was whiter than a ghost, but the light was dim in the room so the lady couldn't. She tried to get me to make Jess go but I wouldn't do it. Jess did take me downstairs after her headache was better (they did give her medicine for that - it is the only medicine ordered for her). She wanted to go to the bookstore but missed it by a half hour. Then we got some food at the cafeteria and came back. She was exhausted again. </p><p> </p><p>Overall she is doing well even though her pain level is usually around an 8 or 9. I don't think they understand that she is going to smile and try not to really show it to people because she doesn't know them. She gets embarrassed because she hurts so she hides it way too well. At least the pain doctor believes that if you say you are in pain then you are in pain. Period. She told Jess that NO ONE can tell you that you are not in pain or it is not as bad as you say.</p><p> </p><p>I hope we start some medications or something tomorrow. PT or Occupational Therapist (OT) at least. She is going to the Breakfast Group in themorning. The Occupational Therapist (OT) has the kids all come eat together, which I think is a great thing. </p><p> </p><p>She has met a friend here. The friend is two rooms away and the girls are planning to do some board games tomorrow. </p><p> </p><p>That is the update for tonight. Hugs to all.</p></blockquote><p></p>
[QUOTE="susiestar, post: 390667, member: 1233"] Today the doctor was here for a couple minutes. He said the EEG was "great" whatever that means, and he wants the PT and Occupational Therapist (OT) people to work with Jess. They have a lot of activities planned by the child life people. The therapy dogs came in today and were really cute and fun. One of the dog's owners was really snotty though. ALL of the kids had already held her dog and I asked if I could. She flat out said "No, you aren't a child and we aren't here for you. You can just go away." I was floored. So far she has been the only rude person we have encountered. Jess went all the way downstairs to the cafeteria to look around, then to the library on another floor, then she went to the dog therapy for an hour (just time to play with the 3 dogs). She was really tired from it, and got a migraine. The child life person tried to push her into going to another group but Jess held her ground and stayed in the room. I could see she was exhausted because she was whiter than a ghost, but the light was dim in the room so the lady couldn't. She tried to get me to make Jess go but I wouldn't do it. Jess did take me downstairs after her headache was better (they did give her medicine for that - it is the only medicine ordered for her). She wanted to go to the bookstore but missed it by a half hour. Then we got some food at the cafeteria and came back. She was exhausted again. Overall she is doing well even though her pain level is usually around an 8 or 9. I don't think they understand that she is going to smile and try not to really show it to people because she doesn't know them. She gets embarrassed because she hurts so she hides it way too well. At least the pain doctor believes that if you say you are in pain then you are in pain. Period. She told Jess that NO ONE can tell you that you are not in pain or it is not as bad as you say. I hope we start some medications or something tomorrow. PT or Occupational Therapist (OT) at least. She is going to the Breakfast Group in themorning. The Occupational Therapist (OT) has the kids all come eat together, which I think is a great thing. She has met a friend here. The friend is two rooms away and the girls are planning to do some board games tomorrow. That is the update for tonight. Hugs to all. [/QUOTE]
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