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Autistic daughter bounced from hospital to hospital
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<blockquote data-quote="susiestar" data-source="post: 715313" data-attributes="member: 1233"><p>Are you on her HIPPA forms? What are all these limits on visitation? I live in a small town and even our podunk hospital has all day visiting and has since the 1980s when I was a candy striper. The big hospitals all do also. I don't even know of a hospital in my state that has less than 9 am to 8 pm visiting hours except for psychiatric hospitals and those are for different reasons.</p><p></p><p>Why would someone autistic go to a psychiatric hospital? They just need to be talked through the treatment or to have the treatment modified to something they can tolerate. Usually it can be modified if you are creative - drops rather than ointment, using whatever calms the patient to get them to tolerate the treatment, etc... Autistic people have rights just like anyone else, and the right to not have treatment forced on them.</p><p></p><p>Get your daughter a lawyer to protect her rights. They cannot force a medication wash if her private doctor is okay with her medications and she does not want one and you are okay with trying her treatment at home. Have you tried to get disability for her? I don't know if adults can get waivers for at home nursing care, but that might be what you need to keep her out of a hospital. It sounds like a whole bunch of uneducated idiots trying to force her to do something she doesn't understand in a way that is easy for them. Her brain processes things differently and they have to go at HER speed, not theirs even though it is a PITA to them. That is why you need to try to be with her if you can for visiting hours to make sure they are not mistreating her. I would not have my kid/adult kid in a psychiatric hospital for medical treatment under any circumstances. </p><p></p><p>I would also sue the hospitals that bounced her out over and over without treating her if you can. They did not meet her needs or treat her and it simply is not acceptable, nor is allowing you to be with her. I am pretty sure if she wants you with her, you can be, that is HER right and not their right. In fact, most hospitals allow you to have someone with you overnight. I had what they originally thought was a stroke and they let my mother stay in the room with me all weekend. Visiting hours were posted but no one ever said a word to her. Another time I was in for a week with an infection in a tiny hospital and my mom stayed for most of the week. Including nights. It was not a problem and no one brought up leaving. They brought her meals. Never asked if she wanted one, just said here. I was married with my own kids, so I was NOT a kid at the time (mostly I wanted my mom to leave, but she was worried, so I wasn't going to tell her to leave.)</p><p></p><p>Make very nice to the nurses. Even when you want to stab them in the eye with a rusty nail. They have a ton more power than you would think and can get you all sorts of info that can help if you end up needing to sue. FYI, if you ever have surgery, always get the surgical notes as well as the regular medical records because they are different and they hide the surgical notes unless you ask. Just in case your daughter's eyes get that bad. I hope they do not.</p></blockquote><p></p>
[QUOTE="susiestar, post: 715313, member: 1233"] Are you on her HIPPA forms? What are all these limits on visitation? I live in a small town and even our podunk hospital has all day visiting and has since the 1980s when I was a candy striper. The big hospitals all do also. I don't even know of a hospital in my state that has less than 9 am to 8 pm visiting hours except for psychiatric hospitals and those are for different reasons. Why would someone autistic go to a psychiatric hospital? They just need to be talked through the treatment or to have the treatment modified to something they can tolerate. Usually it can be modified if you are creative - drops rather than ointment, using whatever calms the patient to get them to tolerate the treatment, etc... Autistic people have rights just like anyone else, and the right to not have treatment forced on them. Get your daughter a lawyer to protect her rights. They cannot force a medication wash if her private doctor is okay with her medications and she does not want one and you are okay with trying her treatment at home. Have you tried to get disability for her? I don't know if adults can get waivers for at home nursing care, but that might be what you need to keep her out of a hospital. It sounds like a whole bunch of uneducated idiots trying to force her to do something she doesn't understand in a way that is easy for them. Her brain processes things differently and they have to go at HER speed, not theirs even though it is a PITA to them. That is why you need to try to be with her if you can for visiting hours to make sure they are not mistreating her. I would not have my kid/adult kid in a psychiatric hospital for medical treatment under any circumstances. I would also sue the hospitals that bounced her out over and over without treating her if you can. They did not meet her needs or treat her and it simply is not acceptable, nor is allowing you to be with her. I am pretty sure if she wants you with her, you can be, that is HER right and not their right. In fact, most hospitals allow you to have someone with you overnight. I had what they originally thought was a stroke and they let my mother stay in the room with me all weekend. Visiting hours were posted but no one ever said a word to her. Another time I was in for a week with an infection in a tiny hospital and my mom stayed for most of the week. Including nights. It was not a problem and no one brought up leaving. They brought her meals. Never asked if she wanted one, just said here. I was married with my own kids, so I was NOT a kid at the time (mostly I wanted my mom to leave, but she was worried, so I wasn't going to tell her to leave.) Make very nice to the nurses. Even when you want to stab them in the eye with a rusty nail. They have a ton more power than you would think and can get you all sorts of info that can help if you end up needing to sue. FYI, if you ever have surgery, always get the surgical notes as well as the regular medical records because they are different and they hide the surgical notes unless you ask. Just in case your daughter's eyes get that bad. I hope they do not. [/QUOTE]
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Autistic daughter bounced from hospital to hospital
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