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General Parenting
Back again. With some answers. A few, at least. :) And a suggestion for parents!
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<blockquote data-quote="OrganizedChaos" data-source="post: 474862" data-attributes="member: 12670"><p>Thank you, Buddy! I'm so so worried that he'll need to wear some sort of c-pap machine while sleeping. There's no way he'd allow that, he can't stand things on his face or hands (sensory, I'm assuming?). He won't wear hats, scarves or mittens/gloves! We can only get him to wear shoes and socks outside (not in the car, just OUTSIDE lol). His oxygen was dipping into the 80's. So HOPEFULLY the surgery will take care of it. In the 5ish hours he slept he had 37 episodes of him waking. He didn't always come fully awake during those times but it was noted by the test. If I was waking up that much I don't think I'd even be able to get out of bed in the morning! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /></p><p></p><p>Thank you again. We're trying to push forward. I've done a lot of hard things in my life. The hardest thing I've ever had to do is be this child's advocate. So many people think they know more than us parents because they went to school. I concede that on a medical field they know more than me but they don't spend all day every day with my son. I WISH all doctors would understand that and remember it. I wish it wasn't so difficult to get the help we need. I wish they wouldn't be like, "well, he has Aspergers. Okay, well, have a nice day!" No. Tell me what to do, where to go, who to see! You can't just give a diagnosis and send us out the door! Argh!!! I could go on all night about how I feel about that one...And I need to go to bed, not get my dander up. More phone calls to make in the morning. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /></p></blockquote><p></p>
[QUOTE="OrganizedChaos, post: 474862, member: 12670"] Thank you, Buddy! I'm so so worried that he'll need to wear some sort of c-pap machine while sleeping. There's no way he'd allow that, he can't stand things on his face or hands (sensory, I'm assuming?). He won't wear hats, scarves or mittens/gloves! We can only get him to wear shoes and socks outside (not in the car, just OUTSIDE lol). His oxygen was dipping into the 80's. So HOPEFULLY the surgery will take care of it. In the 5ish hours he slept he had 37 episodes of him waking. He didn't always come fully awake during those times but it was noted by the test. If I was waking up that much I don't think I'd even be able to get out of bed in the morning! ;) Thank you again. We're trying to push forward. I've done a lot of hard things in my life. The hardest thing I've ever had to do is be this child's advocate. So many people think they know more than us parents because they went to school. I concede that on a medical field they know more than me but they don't spend all day every day with my son. I WISH all doctors would understand that and remember it. I wish it wasn't so difficult to get the help we need. I wish they wouldn't be like, "well, he has Aspergers. Okay, well, have a nice day!" No. Tell me what to do, where to go, who to see! You can't just give a diagnosis and send us out the door! Argh!!! I could go on all night about how I feel about that one...And I need to go to bed, not get my dander up. More phone calls to make in the morning. ;) [/QUOTE]
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Back again. With some answers. A few, at least. :) And a suggestion for parents!
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