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Call from doctor - Surgery New Year's Eve for DS
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<blockquote data-quote="gcvmom" data-source="post: 396289" data-attributes="member: 3444"><p>As for the why or what's causing it? It's an autoimmune disease. There is likely a genetic component. They don't yet know what the specific triggers are that turn the genes for autoimmune disorders "on" in someone. </p><p> </p><p>The good news is that there is a lot of sharing of scientific data going on right now between researchers working on diseases like Crohn's, RA, MS, etc., because they share a lot of genetic similarities (we now know thanks to the human genome project) and they are finding that medications that work for one can work for another autoimmune disease. And there are lots of different medications out there now that weren't even there five years ago, and many more in the pipeline. </p><p></p><p>Hopefully he's got a good rheumatologist who will start him on some kind of treatment therapy that will put this into remission and hopefully last a very long time. My difficult child 1 with Crohn's has been in remission four about 4 years now. When he was diagnosed at age 11 1/2, he only weighed 57 pounds and wasn't even on the growth charts for height because he was so malnourished and delayed because of his disease. Once we hit remission, he grew steadily and has now caught up to where he is supposed to be for his age. In fact, since September, he's gained 10 pounds and grown 1/2 an inch. So remission is possible.</p></blockquote><p></p>
[QUOTE="gcvmom, post: 396289, member: 3444"] As for the why or what's causing it? It's an autoimmune disease. There is likely a genetic component. They don't yet know what the specific triggers are that turn the genes for autoimmune disorders "on" in someone. The good news is that there is a lot of sharing of scientific data going on right now between researchers working on diseases like Crohn's, RA, MS, etc., because they share a lot of genetic similarities (we now know thanks to the human genome project) and they are finding that medications that work for one can work for another autoimmune disease. And there are lots of different medications out there now that weren't even there five years ago, and many more in the pipeline. Hopefully he's got a good rheumatologist who will start him on some kind of treatment therapy that will put this into remission and hopefully last a very long time. My difficult child 1 with Crohn's has been in remission four about 4 years now. When he was diagnosed at age 11 1/2, he only weighed 57 pounds and wasn't even on the growth charts for height because he was so malnourished and delayed because of his disease. Once we hit remission, he grew steadily and has now caught up to where he is supposed to be for his age. In fact, since September, he's gained 10 pounds and grown 1/2 an inch. So remission is possible. [/QUOTE]
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Call from doctor - Surgery New Year's Eve for DS
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