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<blockquote data-quote="Josie" data-source="post: 115640" data-attributes="member: 1792"><p>If you do the Lyme testing, make sure it is from a specialty lab. I used IGeneX but I think there are one or two others. I ordered the test from IGeneX and took it to the doctor but he had to order it. </p><p></p><p>From what I understand (and I am far from an expert so far), the Western Blot test is pretty good. I don't think any of them are definitive. The Western Blot test shows different bands of antibodies as its result. LLMD's (Lyme Literate MD's) will treat for Lyme if there are symptoms and/or if there is one postive band on the Western Blot test. It takes a lot more than one band for most doctors to call it positive. If you do the test, make sure you get the results so you can see for yourself what if any bands are positive.</p><p></p><p>I was lucky to get my daughter into an LLMD in 2 weeks. A lot of times, it takes longer, I think. You might want to make an appointment, even if you end up cancelling it, just in case.</p><p></p><p>I think if you really want to rule out Lyme disease, you should go to an LLMD, even if you do the IGeneX test and it is negative. I think the other doctors are too quick about ruling it out. I think the LLLMD's also look for other causes of symptoms before diagnosis'ing Lyme if the test results are negative. So one of them might be able to get you an answer even if it isn't Lyme.</p></blockquote><p></p>
[QUOTE="Josie, post: 115640, member: 1792"] If you do the Lyme testing, make sure it is from a specialty lab. I used IGeneX but I think there are one or two others. I ordered the test from IGeneX and took it to the doctor but he had to order it. From what I understand (and I am far from an expert so far), the Western Blot test is pretty good. I don't think any of them are definitive. The Western Blot test shows different bands of antibodies as its result. LLMD's (Lyme Literate MD's) will treat for Lyme if there are symptoms and/or if there is one postive band on the Western Blot test. It takes a lot more than one band for most doctors to call it positive. If you do the test, make sure you get the results so you can see for yourself what if any bands are positive. I was lucky to get my daughter into an LLMD in 2 weeks. A lot of times, it takes longer, I think. You might want to make an appointment, even if you end up cancelling it, just in case. I think if you really want to rule out Lyme disease, you should go to an LLMD, even if you do the IGeneX test and it is negative. I think the other doctors are too quick about ruling it out. I think the LLLMD's also look for other causes of symptoms before diagnosis'ing Lyme if the test results are negative. So one of them might be able to get you an answer even if it isn't Lyme. [/QUOTE]
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