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<blockquote data-quote="P-nut2004" data-source="post: 425759" data-attributes="member: 11740"><p>Marg & Exhausted I agree with both of you, we <strong>should</strong> speak out, it <strong>is</strong> the right thing to do, and nothing will change about the perception of mental disabilities until that happens. I have been known to speak up in a public situation when someone who does not know me or my child comments on Ls behavior (although usually the other person then acts like ur kid has a contagious disease) & I have been very outspoken at Ls school. However, I agree with Exhausted's statement, there is no way Im going on facebook and posting anything about Ls difficult child behavior or the achievements she has made that others would not see as something to celebrate. I am the world's worst about keeping my mouth shut around our friends and family but it is starting to eat at me big time. I have one particular relative 'W', who is relentless about fussing at L when we are around her. I try to tell W that L cannot help her behavior but she still feels the need to nitpick at everything L does, she calls her weird and has even said to me 'She's kinda special huh?' I have tried over and over to explain L's dxs to her but I'm starting to wonder if she is the 'special' one because she doesn't get it. She fusses at L about still wearing a pad which infuriates me because she cant help the incontinence, and when L had the depressive episode a couple months ago & had to be taken to the psychiatric hospital for suicidal behavior, W would not let go of it, asking me 50 questions etc. Now she refers to it as 'that freaky episode L had' and brought it up in front of her whole family (she married into DHS side) last weekend, wanted me to explain it to her mother like it was some sort of anecdote we should laugh about. </p><p><img src="/community/styles/default/xenforo/smilies/emoticons/grrr.gif" class="smilie" loading="lazy" alt=":grrr:" title="grrr :grrr:" data-shortname=":grrr:" /></p><p>W is just the worst one I have to deal with, most of our fam & friends do not understand L & when I do try to speak up it usually doesn't go well. Some think she shouldn't be medicated, some think its all my fault/ DHs fault (depending on who's side of the family their in). I even have one friend with a total difficult child kid that is Ls best buddy/parter in crime and she is adamant that there's nothing wrong with L (which I am completely convinced is because if she accepts that L has issues she has to accept that her kids does too). So I totally understand that we need to speak out and educate people but that is so much easier said than done. And when I do feel jealous because a friend has called to tell me their kid did something fabulous, like one who's kid recently won a kiddy pageant, I just can't make myself say "That's awesome, L made it through the grocery store today without a meltdown & then she cleaned her whole room" even tho <strong>if</strong> that happened it would be a huge accomplishment for L.</p><p></p><p>*sigh* This stuff is really hard to deal with....any of you guys who have gotten past being 'afraid' to speak up have my utmost respect!</p></blockquote><p></p>
[QUOTE="P-nut2004, post: 425759, member: 11740"] Marg & Exhausted I agree with both of you, we [B]should[/B] speak out, it [B]is[/B] the right thing to do, and nothing will change about the perception of mental disabilities until that happens. I have been known to speak up in a public situation when someone who does not know me or my child comments on Ls behavior (although usually the other person then acts like ur kid has a contagious disease) & I have been very outspoken at Ls school. However, I agree with Exhausted's statement, there is no way Im going on facebook and posting anything about Ls difficult child behavior or the achievements she has made that others would not see as something to celebrate. I am the world's worst about keeping my mouth shut around our friends and family but it is starting to eat at me big time. I have one particular relative 'W', who is relentless about fussing at L when we are around her. I try to tell W that L cannot help her behavior but she still feels the need to nitpick at everything L does, she calls her weird and has even said to me 'She's kinda special huh?' I have tried over and over to explain L's dxs to her but I'm starting to wonder if she is the 'special' one because she doesn't get it. She fusses at L about still wearing a pad which infuriates me because she cant help the incontinence, and when L had the depressive episode a couple months ago & had to be taken to the psychiatric hospital for suicidal behavior, W would not let go of it, asking me 50 questions etc. Now she refers to it as 'that freaky episode L had' and brought it up in front of her whole family (she married into DHS side) last weekend, wanted me to explain it to her mother like it was some sort of anecdote we should laugh about. :grrr: W is just the worst one I have to deal with, most of our fam & friends do not understand L & when I do try to speak up it usually doesn't go well. Some think she shouldn't be medicated, some think its all my fault/ DHs fault (depending on who's side of the family their in). I even have one friend with a total difficult child kid that is Ls best buddy/parter in crime and she is adamant that there's nothing wrong with L (which I am completely convinced is because if she accepts that L has issues she has to accept that her kids does too). So I totally understand that we need to speak out and educate people but that is so much easier said than done. And when I do feel jealous because a friend has called to tell me their kid did something fabulous, like one who's kid recently won a kiddy pageant, I just can't make myself say "That's awesome, L made it through the grocery store today without a meltdown & then she cleaned her whole room" even tho [B]if[/B] that happened it would be a huge accomplishment for L. *sigh* This stuff is really hard to deal with....any of you guys who have gotten past being 'afraid' to speak up have my utmost respect! [/QUOTE]
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