Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
Compulsive eating
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="susiestar" data-source="post: 718317" data-attributes="member: 1233"><p>Oh, you ended up in runaround city? I know a few people who got there also. Kids without classic autism symptoms, or with them but without really knowing who to ask to figure out who to see to get a diagnosis, and no matter what, they got told to ask someone else. That is bovine excrement if you ask me. Our society needs to do better than this.</p><p></p><p>First of all, look online for an autism parents group in your area. Even look for an online group and see what doctors in the big cities you can get to are recommended as helpful by their members. Then see what doctors recommended by those groups are covered by your insurance. Then get your pediatrician to make the referrals. If the pediatrician doesn't want to make the referral, cry. Take your child in on his most overstimulated, cranky, least wanting to be there, least cooperative day, and tell the doctor you would be MORE than happy to leave just as soon as he either fixes whatever makes your son do this every time he gets tired/cranky/overwhelmed/it's-Tuesday/raining/whatever or he makes those referrals you want. Trust me, he will make those referrals. He may put a big note in yoru chart to not leave you stuck in a little room for 45 min, but oh, wait, that was MY SON! SORRY!!! </p><p></p><p>Yes, I did that to a doctor and yes, it worked. It likely would for you also. I always sort of hate to do that to people, but really, what do they expect if they say no when I ask nicely? When it came to my kids needing something, nice was for wimps, not me. I didn't really care if they liked me, I cared if they gave my kids what they needed. (As I later found out, at least one of my children used me as a weapon against people - as in "do you REALLY want to discuss this with my mother?" LOL !!! that would be my daughter! As she told one principal , "I don't have to be mean. That's what Mommy is for." Her principal laughed so hard they thought she was having hysterics.)</p><p></p><p>You need to get into contact with some of the online autism groups and see who they recommend in your neck of the woods. I am sure that your state has some autism foundations or groups and they will have doctors their members like. That is a good place to start. They may even have parent support groups. Other than that, look for neuropsychologists for testing, developmental pediatricians, maybe a Children's Hospital would be a good place to find these specialties. You also want Occupational Therapists who deal with sensory integration disorder. </p><p></p><p>One thing that I did find illuminating with my kids was the books The OUt of Sync Child and The Out of Sync Child Has Fun both by Kranowitz. If I had to get one from the library and could only buy one, I would buy the Has Fun book. The first book describes sensory integration disorder and how to treat it. It is amazing. The Has Fun book is FUN. Your kids are at wonderful ages to get the most out of the book. The activities they will really enjoy are the ones that they will actually need - they will be drawn to those activities like they are magnets. Isn't that lovely? Something super fun that is actually good for them and their brains? Shortly after we got our first copy of this book the rest of the kids in the neighborhood discovered it. I swear some sort of message went out every single time I got the book out. I would have every kid in the area in my yard wanting to see what we were doing and if they could play too. How do you tell kids they cannot have fun? We wore out that first copy very fast and had to replace it. It is a great book. Most libraries have it or can get it on loan.</p></blockquote><p></p>
[QUOTE="susiestar, post: 718317, member: 1233"] Oh, you ended up in runaround city? I know a few people who got there also. Kids without classic autism symptoms, or with them but without really knowing who to ask to figure out who to see to get a diagnosis, and no matter what, they got told to ask someone else. That is bovine excrement if you ask me. Our society needs to do better than this. First of all, look online for an autism parents group in your area. Even look for an online group and see what doctors in the big cities you can get to are recommended as helpful by their members. Then see what doctors recommended by those groups are covered by your insurance. Then get your pediatrician to make the referrals. If the pediatrician doesn't want to make the referral, cry. Take your child in on his most overstimulated, cranky, least wanting to be there, least cooperative day, and tell the doctor you would be MORE than happy to leave just as soon as he either fixes whatever makes your son do this every time he gets tired/cranky/overwhelmed/it's-Tuesday/raining/whatever or he makes those referrals you want. Trust me, he will make those referrals. He may put a big note in yoru chart to not leave you stuck in a little room for 45 min, but oh, wait, that was MY SON! SORRY!!! Yes, I did that to a doctor and yes, it worked. It likely would for you also. I always sort of hate to do that to people, but really, what do they expect if they say no when I ask nicely? When it came to my kids needing something, nice was for wimps, not me. I didn't really care if they liked me, I cared if they gave my kids what they needed. (As I later found out, at least one of my children used me as a weapon against people - as in "do you REALLY want to discuss this with my mother?" LOL !!! that would be my daughter! As she told one principal , "I don't have to be mean. That's what Mommy is for." Her principal laughed so hard they thought she was having hysterics.) You need to get into contact with some of the online autism groups and see who they recommend in your neck of the woods. I am sure that your state has some autism foundations or groups and they will have doctors their members like. That is a good place to start. They may even have parent support groups. Other than that, look for neuropsychologists for testing, developmental pediatricians, maybe a Children's Hospital would be a good place to find these specialties. You also want Occupational Therapists who deal with sensory integration disorder. One thing that I did find illuminating with my kids was the books The OUt of Sync Child and The Out of Sync Child Has Fun both by Kranowitz. If I had to get one from the library and could only buy one, I would buy the Has Fun book. The first book describes sensory integration disorder and how to treat it. It is amazing. The Has Fun book is FUN. Your kids are at wonderful ages to get the most out of the book. The activities they will really enjoy are the ones that they will actually need - they will be drawn to those activities like they are magnets. Isn't that lovely? Something super fun that is actually good for them and their brains? Shortly after we got our first copy of this book the rest of the kids in the neighborhood discovered it. I swear some sort of message went out every single time I got the book out. I would have every kid in the area in my yard wanting to see what we were doing and if they could play too. How do you tell kids they cannot have fun? We wore out that first copy very fast and had to replace it. It is a great book. Most libraries have it or can get it on loan. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
Compulsive eating
Top