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I am taking opiods for chronic pain.  I went on them being fully aware that I might be on them for decades.  But I am severely allergic to every NSAID we have tried (10 of them, after developing an allergy to the first 5, I got an allergic reaction with the first dose) and have been told not to try any more of them.  I don't tolerate steroids well and opiods are all that is left that has a chance of working, medication wise.  Now my idiot doctor wants to wean me off of them.  I am terrified as the pain is bad enough to make me severely suicidal with-o medications.  My family is also terrified for me. 


I hate the doctor - the one I like left and I got shuffled to my current one.  Every patient of hers in the waiting room HATES her and hse only get s new patients when a doctor leaves and she takes their patients.  I know this from listening to her staff talk.  They despise  her except for her ARNP.  If she would listen and remember things from one appointment to the next it would be nice.  She does NOT.  Not even things I write down and she attaches to the chart!  Each visit she lowers something and tries to add an NSAID.  To this day she cannot remember (or read the big red letters on the chart that say "Allergies and the drugs she pushes) that I am UNABLE to take those medications. 


I am not being 'difficult' as she has commented.  My body is unable to tolerate these medications largely because a doctor severely over-medicated me with them back in my teens and my body freaked out over it.  You can develop an allergy if overexposed to a medication, and I was on amounts that would be too much for a 350 lb male - and I was only 80 lbs at most.  Now even an allergist has told me it is dangerous to try every new NSAID because it will just end up the same way and could kill me. 


I don''t know what to do, but the 3 times the medication have been lowered have already decreased my mobility and functioning drastically.  I use a TENS unit daily and other medications as rx'd, never take more than rx'd, never run out early, had ONE drug test that was wonky, but their employees mixed up my sample and an old man's sample, so it wasn't really a bad result.  It just wasn't MY result.  Now I write  my name on my sample because they don't label the container when they give it to you. they label it after they process it, incl a dip test for an instant read.  I never liked that and they don't like my sharpies - too bad.


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