Thank you everyone. I have been working on finding another doctor, but the second your records are requested, this practice drops you as a patient. That could mean months with-o medications if the new doctor doesn't want to see you or cannot get you in for a few months.
I have done PT many times. Mostly it made things worse. I swell all over. ANYTHING around my body that is firm, like a waistband or bra or tight sleeves or even socks, makes me swell up 2-6 inches.. My face swells to the point it hurts for what the docs say is 'no reason', meaning they don't have a clue why. Phys therapists don't like you to wear a dress but that is all I am ABLE to wear. Plus they all inist on icing the swollen parts. MY body hates cold violently. It goes into muscle spasms that take months to end. One PT refused to believe me and said if cold triggered spasms like that then she would treat me for free until they stopped if I would try cold packs on my back and legs. It took under 20 min for me to be crying in pain and unable to walk. She had to give me 6 months of sessions 3x a week. I made her stick to it and refused to pay or have it filed with my insurance. After all, I told her it would happen and she kept bullying me until we made that agreement.
Exercise seems to make me worse. I have tried very gentle exercises much like the 'sittercise' classes my gma took and I went with her when I visited her. I have all the info from past PT sessions and have worked with a trainer. Every trainer and PT person I have worked with gets frustrated because the more they push the less I can do in the next session - which is opposite what everyone else seems to do. But usually I end up with the most senior trainer/PT person because they are 'fascinated' at how my body reacts. ALWAYS fun to have your health problems fascinate the docs/therapists/etc...
I will watch the TED talks later today or tomorrow, no time now.
Thank you everyone!
