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difficult child manic after right temporal lobectomy
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<blockquote data-quote="liltreasures" data-source="post: 140746" data-attributes="member: 4957"><p>The pediatrician neuro seemed just as unfamiliar with this situation as the epileptologist did (who gave us the referral to the neuro). Along with part of the lobe, they removed a part of the hippocampus and amygdala, too. I believe these areas are attached, so unavoidable, or maybe destroyed by the epilepsy, too. </p><p></p><p>But here's the neuro's theory. There is a chemical released in the brain during a seizure. He believes that when we took away his seizures, we took away the chemical that was keeping him in a, so-too-speak, sedated state. And now we are seeing difficult child for who he really is. </p><p></p><p>His seizure type was Complex Partial with Secondary Generalization. They occurred one day every 4 weeks, with 6-8 during that one day. I figured out that he had missed the equivalent to an entire year of schooling from seizures. I watched him throughout the day and night to make sure he didn't smother. </p><p></p><p>We tried Tegretol, Carbatrol, Depakote, Keppra, and Trileptal to no avail. He went into status four times; twice at home, once in the EMU, and for a grand finale, once 6 weeks after his surgery. </p><p></p><p>Our other option was the VNS (vagul nerve stimulator). When I did research about lobectomies, all I found was positive outcomes. It wasn't until afterwards that I found the forums with people who had had negative outcomes. (I had to try to find out what it was like for other people because difficult child doesn't communicate how he feels). </p><p></p><p>I know I've covered a lot on this thread. I ended up here because I had questions about medications that might help difficult child be less agitated at school. And I know how helpful/informative parents are. So thanks for enduring my long posts.</p></blockquote><p></p>
[QUOTE="liltreasures, post: 140746, member: 4957"] The pediatrician neuro seemed just as unfamiliar with this situation as the epileptologist did (who gave us the referral to the neuro). Along with part of the lobe, they removed a part of the hippocampus and amygdala, too. I believe these areas are attached, so unavoidable, or maybe destroyed by the epilepsy, too. But here's the neuro's theory. There is a chemical released in the brain during a seizure. He believes that when we took away his seizures, we took away the chemical that was keeping him in a, so-too-speak, sedated state. And now we are seeing difficult child for who he really is. His seizure type was Complex Partial with Secondary Generalization. They occurred one day every 4 weeks, with 6-8 during that one day. I figured out that he had missed the equivalent to an entire year of schooling from seizures. I watched him throughout the day and night to make sure he didn't smother. We tried Tegretol, Carbatrol, Depakote, Keppra, and Trileptal to no avail. He went into status four times; twice at home, once in the EMU, and for a grand finale, once 6 weeks after his surgery. Our other option was the VNS (vagul nerve stimulator). When I did research about lobectomies, all I found was positive outcomes. It wasn't until afterwards that I found the forums with people who had had negative outcomes. (I had to try to find out what it was like for other people because difficult child doesn't communicate how he feels). I know I've covered a lot on this thread. I ended up here because I had questions about medications that might help difficult child be less agitated at school. And I know how helpful/informative parents are. So thanks for enduring my long posts. [/QUOTE]
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