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Parent Support Forums
General Parenting
Does anyone ever wonder if the professionals REALLY know what is wrong with our kids?
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<blockquote data-quote="keista" data-source="post: 530219" data-attributes="member: 11965"><p>The problem is that we are humans. By nature we need to quantify, qualify and categorize things. I think Americans more so than others. Unfortunately, it is very difficult to quantify, qualify and categorize human behavior, and personality. It is very often subjective. I just went over DD1's Autism Spectrum Disorders (ASD) evaluation results. It turns out that it wasn't the ADOS she doesn't fall, on, but the ADI-R. OK. Guess who filled that one out? Me. A person who was raised by an Aspie and who's first child is an Aspie and who's uncle is most likely an Aspie and who may not be an Aspie herself, but has tons of traits. IOW To me this is NORMAL. I have no recollection what questions were asked on that evaluation, but if it asked me to gauge if a behavior was within "normal" range or troublesome, I think I skewed the evaluation - ending up with a more "normal" result.</p><p></p><p>Most of these professionals have to make determinations based on what they see in the office and what a parent reports. How much do they really believe what the parent is reporting? How accurately is the parent reporting? and I'm not talking about parents being deceitful, but not fully thinking things out in the moment. How many times did someone ask you about your kids' behaviors and you said No, they never do <em>THAT</em> - simply because you never noticed. After leaving that appointment you start noticing <em>THAT</em> all the time.</p><p></p><p>I think that's the beauty of a forum like this. We have moms (dads too) that get to know their kids inside and out. They suffer through bad dxes just trying to find something - therapy, accommodation, medication, technique - to help their child fit into the world and function. Many eventually get to diagnosis's that make sense and work and can share this information with others. Some keep hunting as their children become adults and still can't function. Some of us recognize ourselves in our children or others children and can share our personal experiences.</p><p></p><p>I truly believe this forum is much more valuable a diagnosis resource than the pros we all rely on. We capture a much broader view all at once.</p></blockquote><p></p>
[QUOTE="keista, post: 530219, member: 11965"] The problem is that we are humans. By nature we need to quantify, qualify and categorize things. I think Americans more so than others. Unfortunately, it is very difficult to quantify, qualify and categorize human behavior, and personality. It is very often subjective. I just went over DD1's Autism Spectrum Disorders (ASD) evaluation results. It turns out that it wasn't the ADOS she doesn't fall, on, but the ADI-R. OK. Guess who filled that one out? Me. A person who was raised by an Aspie and who's first child is an Aspie and who's uncle is most likely an Aspie and who may not be an Aspie herself, but has tons of traits. IOW To me this is NORMAL. I have no recollection what questions were asked on that evaluation, but if it asked me to gauge if a behavior was within "normal" range or troublesome, I think I skewed the evaluation - ending up with a more "normal" result. Most of these professionals have to make determinations based on what they see in the office and what a parent reports. How much do they really believe what the parent is reporting? How accurately is the parent reporting? and I'm not talking about parents being deceitful, but not fully thinking things out in the moment. How many times did someone ask you about your kids' behaviors and you said No, they never do [I]THAT[/I] - simply because you never noticed. After leaving that appointment you start noticing [I]THAT[/I] all the time. I think that's the beauty of a forum like this. We have moms (dads too) that get to know their kids inside and out. They suffer through bad dxes just trying to find something - therapy, accommodation, medication, technique - to help their child fit into the world and function. Many eventually get to diagnosis's that make sense and work and can share this information with others. Some keep hunting as their children become adults and still can't function. Some of us recognize ourselves in our children or others children and can share our personal experiences. I truly believe this forum is much more valuable a diagnosis resource than the pros we all rely on. We capture a much broader view all at once. [/QUOTE]
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Does anyone ever wonder if the professionals REALLY know what is wrong with our kids?
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