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dont know which way to turn
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<blockquote data-quote="buddy" data-source="post: 463970" data-attributes="member: 12886"><p>Wow, not a very parent friendly report. Saying "consistent with" simply borrows words from the test materials and makes it so no one is locked in to something if in future you find out it is something different. But still, those are the results for now on those days for this particular assessment. In my experience it has been common for families to be divided over these issues, including in my family so I do understand. You do have a choice to share the info with the school or not to. You can even decide to wait until they have completed all of their testing and worked with him for a while before you decide to share so they are not colored by the results if that feels right to you. You can share as much or as little as you like and if it was me, I would not sign any blanket releases of information to anyone until I was secure in my decision. If you did, you have the right to revoke it at any time.</p><p>Please dont feel badly for any decisions you have made no matter what the others in your family are saying. Maybe they are at a different place in grieving/accepting what is going on but you are the leader it seems. Any issue will get worse if not treated even kids kids with typical developmental issues so that is a statement that is used often to get help for the person. Sometimes I have hated what I have seen in reports (one even said that he didn't think that my son could be raised in my home given the current situation--boy did I take that personally--in the end that is what got us top dollar support to have IN home service so I just let it ride. Now, no one who works with him would ever think of his going even to residential at present but we are glad the statement was made). In the end we need reports, testing etc. to get services but nothing anyone says ever changes who our child really is. They are not their illnesses, labels, diagnoses, they are our children. Those things are tools to get the best services and inteventions we can get for them, in my humble opinion. It is so very painful to have confirmed what we suspect when there is an issue and my heart breaks for you. You sound like you are doing all the right steps and please know there are people who get it.</p></blockquote><p></p>
[QUOTE="buddy, post: 463970, member: 12886"] Wow, not a very parent friendly report. Saying "consistent with" simply borrows words from the test materials and makes it so no one is locked in to something if in future you find out it is something different. But still, those are the results for now on those days for this particular assessment. In my experience it has been common for families to be divided over these issues, including in my family so I do understand. You do have a choice to share the info with the school or not to. You can even decide to wait until they have completed all of their testing and worked with him for a while before you decide to share so they are not colored by the results if that feels right to you. You can share as much or as little as you like and if it was me, I would not sign any blanket releases of information to anyone until I was secure in my decision. If you did, you have the right to revoke it at any time. Please dont feel badly for any decisions you have made no matter what the others in your family are saying. Maybe they are at a different place in grieving/accepting what is going on but you are the leader it seems. Any issue will get worse if not treated even kids kids with typical developmental issues so that is a statement that is used often to get help for the person. Sometimes I have hated what I have seen in reports (one even said that he didn't think that my son could be raised in my home given the current situation--boy did I take that personally--in the end that is what got us top dollar support to have IN home service so I just let it ride. Now, no one who works with him would ever think of his going even to residential at present but we are glad the statement was made). In the end we need reports, testing etc. to get services but nothing anyone says ever changes who our child really is. They are not their illnesses, labels, diagnoses, they are our children. Those things are tools to get the best services and inteventions we can get for them, in my humble opinion. It is so very painful to have confirmed what we suspect when there is an issue and my heart breaks for you. You sound like you are doing all the right steps and please know there are people who get it. [/QUOTE]
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