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Emily's upcoming doctors. Appointment
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<blockquote data-quote="Hound dog" data-source="post: 453430" data-attributes="member: 84"><p>Not had any experience with the helmet and no clue what the philosophy is for it. </p><p></p><p>Bff's son had toricollis as a young infant and it caused one side of his head to flatten drastically because he favored that side and she just let him stay on it, not realizing it would flatten out his head. I'm not sure they used helmets back then, or if they did no one suggested it. We kept turning him off that side in hopes of rounding out his skull bones, and PT worked with him over the muscles as it was one of the major ways he was diagnosed with cerebral palsy. But this was 11 yrs ago too and I'm sure things have changed since then.</p><p></p><p>When you do get the helmet, have your list of questions ready, no matter how silly some of them may seem. Some docs are great about explaining, others just plain don't really take the time. I always had a long list of questions when I took Travis to the docs, and trained bff to do the same for her son. It helps to make sure you're doing what you should be doing with no misunderstandings or info left out.</p><p></p><p>Like my docs, big brained specialists they were, never thought to tell me that Travis visiting the neuro clinic at children's every week was to keep a close eye on his progress to diagnosis him with CP. After about 6 months of those PITA appts that seemed to be for nothing except Travis shocking them to death with what he could do that they kept telling me he couldn't.....and not one of them taking the time to explain to me he was only doing them due to rigid muscles......I got fed up and stopped going. Travis waited another 12 yrs to get his diagnosis. Just because I had no experience with CP and didn't know the right questions to ask. </p><p></p><p>So don't be afraid to drill them on the theory of how this helmet works, what are the pros and cons, how best to use it, ect. </p><p></p><p>And give lil Emily smoochies from her Auntie Hound, she's such a lil doll baby. And always in my prayers.</p><p></p><p>Hugs</p></blockquote><p></p>
[QUOTE="Hound dog, post: 453430, member: 84"] Not had any experience with the helmet and no clue what the philosophy is for it. Bff's son had toricollis as a young infant and it caused one side of his head to flatten drastically because he favored that side and she just let him stay on it, not realizing it would flatten out his head. I'm not sure they used helmets back then, or if they did no one suggested it. We kept turning him off that side in hopes of rounding out his skull bones, and PT worked with him over the muscles as it was one of the major ways he was diagnosed with cerebral palsy. But this was 11 yrs ago too and I'm sure things have changed since then. When you do get the helmet, have your list of questions ready, no matter how silly some of them may seem. Some docs are great about explaining, others just plain don't really take the time. I always had a long list of questions when I took Travis to the docs, and trained bff to do the same for her son. It helps to make sure you're doing what you should be doing with no misunderstandings or info left out. Like my docs, big brained specialists they were, never thought to tell me that Travis visiting the neuro clinic at children's every week was to keep a close eye on his progress to diagnosis him with CP. After about 6 months of those PITA appts that seemed to be for nothing except Travis shocking them to death with what he could do that they kept telling me he couldn't.....and not one of them taking the time to explain to me he was only doing them due to rigid muscles......I got fed up and stopped going. Travis waited another 12 yrs to get his diagnosis. Just because I had no experience with CP and didn't know the right questions to ask. So don't be afraid to drill them on the theory of how this helmet works, what are the pros and cons, how best to use it, ect. And give lil Emily smoochies from her Auntie Hound, she's such a lil doll baby. And always in my prayers. Hugs [/QUOTE]
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