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Enough already! difficult child 1 home sick again. Warning: too much information
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<blockquote data-quote="gcvmom" data-source="post: 348389" data-attributes="member: 3444"><p>Thanks, Crazy <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> Thankfully, ostomy issues are something we've been able to avoid -- though we have a friend we met through CCFA whose daughter ended up with a temporary one at the age of 9 when she lost her colon due to UC. We learned a lot from them!</p><p> </p><p>I'm pretty sure he's still in remission with the Crohn's. His last couple of labs were just fine -- no signs whatsoever of the disease starting up. SED rate normal, blood counts normal (except for the anemia, which I might be able to explain from all the nosebleeds he was having last summer and fall), liver enzymes normal -- you get the picture. He's been on Imuran for the past 3 1/2 years and that's what got him into remission. He does have an IHP (Individualized Health Plan) and it's pretty comprehensive. The school essentially took what I wrote and copied it verbatim. He IS allowed time to make up work he's missed from being in the bathroom at school, thankfully. His teachers have been pretty understanding, and so is the school admin. They all know he's got issues and so he doesn't get any flak about it.</p><p> </p><p>He had another enema before bed last night, this time I think he held it longer and it was more effective. He said he was able to evacuate, but I don't think we got it all. So depending on how his day goes, I may have him try it again tonight. I gave him another talk about hydration and fiber and how controlling this problem is completely within his/our power. It's just a matter of being consistent. </p><p> </p><p>He saw the psychiatrist today and we're given the o.k. to start Elavil again (that helped alot in the past for his IBS) because the psychiatrist thinks the Tegretol he's on now will buffer him sufficiently from any psychiatric effect the Elavil will have (and it made him pretty aggressive and out of control before). So we're going to start that up again tonight and hopefully we'll know if it's going to help or not by the time he goes back to see his GI on 4/5.</p></blockquote><p></p>
[QUOTE="gcvmom, post: 348389, member: 3444"] Thanks, Crazy :) Thankfully, ostomy issues are something we've been able to avoid -- though we have a friend we met through CCFA whose daughter ended up with a temporary one at the age of 9 when she lost her colon due to UC. We learned a lot from them! I'm pretty sure he's still in remission with the Crohn's. His last couple of labs were just fine -- no signs whatsoever of the disease starting up. SED rate normal, blood counts normal (except for the anemia, which I might be able to explain from all the nosebleeds he was having last summer and fall), liver enzymes normal -- you get the picture. He's been on Imuran for the past 3 1/2 years and that's what got him into remission. He does have an IHP (Individualized Health Plan) and it's pretty comprehensive. The school essentially took what I wrote and copied it verbatim. He IS allowed time to make up work he's missed from being in the bathroom at school, thankfully. His teachers have been pretty understanding, and so is the school admin. They all know he's got issues and so he doesn't get any flak about it. He had another enema before bed last night, this time I think he held it longer and it was more effective. He said he was able to evacuate, but I don't think we got it all. So depending on how his day goes, I may have him try it again tonight. I gave him another talk about hydration and fiber and how controlling this problem is completely within his/our power. It's just a matter of being consistent. He saw the psychiatrist today and we're given the o.k. to start Elavil again (that helped alot in the past for his IBS) because the psychiatrist thinks the Tegretol he's on now will buffer him sufficiently from any psychiatric effect the Elavil will have (and it made him pretty aggressive and out of control before). So we're going to start that up again tonight and hopefully we'll know if it's going to help or not by the time he goes back to see his GI on 4/5. [/QUOTE]
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Enough already! difficult child 1 home sick again. Warning: too much information
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