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Everyone,Emily's CaringBridge Site
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<blockquote data-quote="Stella Johnson" data-source="post: 32567" data-attributes="member: 9"><p>I am a patient at the National Institutes of Health in Bethesda, MD. I have a very rare kidney disease. I thought I would look at their clinical trials for mitochondrial disease since it seemed to be pretty rare. </p><p></p><p>They have lots of clinical trials for this. The doctors there are awesome and the medical treatment is cutting edge. </p><p></p><p>Here is a link for what I found...</p><p><a href="http://clinicaltrials.gov/ct/search;jsessionid=72B246C598F4E5DADDC727A49DF5369F?term=Mitochondrial+disease&submit=Search" target="_blank">http://clinicaltrials.gov/ct/search;jses...e&submit=Search</a></p><p></p><p>It might be an option for Emily. There is no cost for any of their research or treatments. </p><p></p><p>Let me know if you have any questions. If you decide to try it let me know. I have a wonderful geneticist there and he can help you get her in. </p><p></p><p>steph</p></blockquote><p></p>
[QUOTE="Stella Johnson, post: 32567, member: 9"] I am a patient at the National Institutes of Health in Bethesda, MD. I have a very rare kidney disease. I thought I would look at their clinical trials for mitochondrial disease since it seemed to be pretty rare. They have lots of clinical trials for this. The doctors there are awesome and the medical treatment is cutting edge. Here is a link for what I found... [url="http://clinicaltrials.gov/ct/search;jsessionid=72B246C598F4E5DADDC727A49DF5369F?term=Mitochondrial+disease&submit=Search"]http://clinicaltrials.gov/ct/search;jses...e&submit=Search[/url] It might be an option for Emily. There is no cost for any of their research or treatments. Let me know if you have any questions. If you decide to try it let me know. I have a wonderful geneticist there and he can help you get her in. steph [/QUOTE]
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