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<blockquote data-quote="susiestar" data-source="post: 151822" data-attributes="member: 1233"><p>Janet, I am with you on the "inhales deeply". I also don't know where the arthritis ends and the fibro picks up the pain. My rheumy thinks there is something else going on, but as yet can't figure out what besides the thyroid and vit D deficiency.</p><p> </p><p>Anyone with these problems should be checked for vitamin B & D deficiency. Calcium and bone density should also be checked regularly. I am having some luck with Vit D3 instead of Vit D2 or 1. I take zofran or phenergan about an hour before I take it. My body doesn't much like it, but it tolerates it a little bit.</p><p> </p><p>Pain docs can be helpful IF you can get in to see them. They often require you to sign an agreement to ONLY get prescriptions through them and ONLY have them filled at ONE pharmacy. You can pick your pharmacy, but they check and if they just THINK you went to a different one, they WILL drop you.</p><p> </p><p>I had the ONLY doctor who specialized in pain in our town see me ONCE and write "DRUG ADDICT - DO NOT TREAT" in big letters across the page as I sat there telling him the problems. Because of this I have NOT been able to get in to a pain doctor office anywhere in my state. They look to see what my insurance has paid for, and somehow this docs name comes up in their records. I never mention it. Have had NO luck in getting him to change this - though I am NOT an addict.</p><p> </p><p>I did have the main pain doctor practice in the city do my steroid injection before surgery. This is the injection that resulted in a major migraine type headache for WEEKS. The doctor himself said I should be treated by him, asked why I wasn't. I told him flat out that his staff called me an addict and refused to even look at records, much less give me an appointment. He apologized and said they would treat me if I wanted. I said lets do the shot and see how that goes,then I would decide. Well, they refused to even talk to me after the first call about the headache. And, they were incredibly RUDE. So I sent the doctor a letter and won't go back.</p><p> </p><p>If you can see a GOOD pain doctor, go for it. Otherwise, a compassionate rheumatologist is a great choice. Sometimes a neurologist will treat fibro well, because it is a disorder of the central nervous system. mostly they don't want to be bothered, in my experience.</p><p> </p><p>There are some websites with lists of docs that have treated fibro patients well. If I can find it I will post it. That is where I found my doctor. His partner was listed, but she has been ill and quit taking patients. So I gambled on my doctor. he is abso wonderful. </p><p> </p><p>Anyone in OK, Pm me and I will give you the names of the docs I see that are great with fibro.</p><p> </p><p>Susie</p></blockquote><p></p>
[QUOTE="susiestar, post: 151822, member: 1233"] Janet, I am with you on the "inhales deeply". I also don't know where the arthritis ends and the fibro picks up the pain. My rheumy thinks there is something else going on, but as yet can't figure out what besides the thyroid and vit D deficiency. Anyone with these problems should be checked for vitamin B & D deficiency. Calcium and bone density should also be checked regularly. I am having some luck with Vit D3 instead of Vit D2 or 1. I take zofran or phenergan about an hour before I take it. My body doesn't much like it, but it tolerates it a little bit. Pain docs can be helpful IF you can get in to see them. They often require you to sign an agreement to ONLY get prescriptions through them and ONLY have them filled at ONE pharmacy. You can pick your pharmacy, but they check and if they just THINK you went to a different one, they WILL drop you. I had the ONLY doctor who specialized in pain in our town see me ONCE and write "DRUG ADDICT - DO NOT TREAT" in big letters across the page as I sat there telling him the problems. Because of this I have NOT been able to get in to a pain doctor office anywhere in my state. They look to see what my insurance has paid for, and somehow this docs name comes up in their records. I never mention it. Have had NO luck in getting him to change this - though I am NOT an addict. I did have the main pain doctor practice in the city do my steroid injection before surgery. This is the injection that resulted in a major migraine type headache for WEEKS. The doctor himself said I should be treated by him, asked why I wasn't. I told him flat out that his staff called me an addict and refused to even look at records, much less give me an appointment. He apologized and said they would treat me if I wanted. I said lets do the shot and see how that goes,then I would decide. Well, they refused to even talk to me after the first call about the headache. And, they were incredibly RUDE. So I sent the doctor a letter and won't go back. If you can see a GOOD pain doctor, go for it. Otherwise, a compassionate rheumatologist is a great choice. Sometimes a neurologist will treat fibro well, because it is a disorder of the central nervous system. mostly they don't want to be bothered, in my experience. There are some websites with lists of docs that have treated fibro patients well. If I can find it I will post it. That is where I found my doctor. His partner was listed, but she has been ill and quit taking patients. So I gambled on my doctor. he is abso wonderful. Anyone in OK, Pm me and I will give you the names of the docs I see that are great with fibro. Susie [/QUOTE]
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