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First post- desperate for support
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<blockquote data-quote="buddy" data-source="post: 483083" data-attributes="member: 12886"><p>Hi MLA, So glad you found us. Most of us found this board on a day like you seem to be having.... or a year, tee hee. That is an interesting diagnosis, and as you talk to us you will find lots of ideas and some may fit, some may not.... just know that many of us have started at one place with our kids and ended up in a whole 'nother country! </p><p></p><p>In any event, OH YEAH I can truly relate to a kid who is on again, and extremely off again. Can be scary even. His eyes will even change. My son has neurological injuries that contribute, but the experiences from our perspecives I bet are similar in many ways ... and I have been here long enough to know that there are LOTS of folks here who will relate to the behaviors (regardless of diagnosis). </p><p></p><p>I too have questions, we are not trying to be nosy, you will find that this group really does care and with detail (not identifying of course) we can better relate and even if we are not directly experiencing your situation, we may have heard of others and know where to help you look. </p><p></p><p>I too would love to know when you started noticing these things? What kinds of professionals you have been able to see, are you using any kinds of therapies, including medication or are those things not a good fit for you.... ??? How does she do in school? Are you in the USA, Canada, other country? While there are many here from the US, this is an international community here, so you will likely find someone who can help that way too. </p><p></p><p>I am an Speech Language Pathologist (SLP) and have been on diagnosis teams, but even for my son, who has a known brain injury so no questions there.... when I got another diagnosis of autism(he had a Pervasive Developmental Disorder (PDD) diagnosis that I didn't know about until after he was adopted, they said they didn't think it was true..lol) I STILL went to another place for an evaluation. It was my work clinic that even diagnosis him the first time, lol! Still, it did help to go because the fact is, people did see him differently. It helped me get information about treatment options too. </p><p></p><p>Is her diagnosis a mental health diagnosis? (similar to bi-polar?) IF you are comfortable that is. </p><p></p><p>Is she aggressive? Mine is, several of us have that here. We are often judged in he real world for that. </p><p></p><p>I am glad you are here, I will hold off on any more questions, certainly not trying to pry or traumatize you. Please know you are not alone. This board is full of a huge range of diagnosis and many with multiple diagnosis. And as moms and dads (more moms I think) here, we really do find comfort here. </p><p></p><p>Welcome again, Buddy (aka Dee)</p><p></p><p></p><p>ADDED: Hi, I am back, I just googled regulatory disorder, because I felt like I fumbled thru my post to you. Sorry. OK so is the terminology you are using primarily related to the sensory processing stuff? That seemed to pop up the most. But you said it is paired with sensory stuff. I would love to learn more. I am sure there are others out there that will hear your story and say HEY...that sounds like my kid. </p><p></p><p>As I said, regardless of diagnosis, on this board...you will find many who can say to you...yup, been there, done that! I have a MAJOR sensory integration /processing disorder kind of kiddo. Those issues are sometimes the underlying issue for him in his behaviors, other times are things that compound the behaviors. Then there are days like today, he was sooo great. I am very grateful for a day like today!</p><p></p><p>again, welcome. You are not alone!</p></blockquote><p></p>
[QUOTE="buddy, post: 483083, member: 12886"] Hi MLA, So glad you found us. Most of us found this board on a day like you seem to be having.... or a year, tee hee. That is an interesting diagnosis, and as you talk to us you will find lots of ideas and some may fit, some may not.... just know that many of us have started at one place with our kids and ended up in a whole 'nother country! In any event, OH YEAH I can truly relate to a kid who is on again, and extremely off again. Can be scary even. His eyes will even change. My son has neurological injuries that contribute, but the experiences from our perspecives I bet are similar in many ways ... and I have been here long enough to know that there are LOTS of folks here who will relate to the behaviors (regardless of diagnosis). I too have questions, we are not trying to be nosy, you will find that this group really does care and with detail (not identifying of course) we can better relate and even if we are not directly experiencing your situation, we may have heard of others and know where to help you look. I too would love to know when you started noticing these things? What kinds of professionals you have been able to see, are you using any kinds of therapies, including medication or are those things not a good fit for you.... ??? How does she do in school? Are you in the USA, Canada, other country? While there are many here from the US, this is an international community here, so you will likely find someone who can help that way too. I am an Speech Language Pathologist (SLP) and have been on diagnosis teams, but even for my son, who has a known brain injury so no questions there.... when I got another diagnosis of autism(he had a Pervasive Developmental Disorder (PDD) diagnosis that I didn't know about until after he was adopted, they said they didn't think it was true..lol) I STILL went to another place for an evaluation. It was my work clinic that even diagnosis him the first time, lol! Still, it did help to go because the fact is, people did see him differently. It helped me get information about treatment options too. Is her diagnosis a mental health diagnosis? (similar to bi-polar?) IF you are comfortable that is. Is she aggressive? Mine is, several of us have that here. We are often judged in he real world for that. I am glad you are here, I will hold off on any more questions, certainly not trying to pry or traumatize you. Please know you are not alone. This board is full of a huge range of diagnosis and many with multiple diagnosis. And as moms and dads (more moms I think) here, we really do find comfort here. Welcome again, Buddy (aka Dee) ADDED: Hi, I am back, I just googled regulatory disorder, because I felt like I fumbled thru my post to you. Sorry. OK so is the terminology you are using primarily related to the sensory processing stuff? That seemed to pop up the most. But you said it is paired with sensory stuff. I would love to learn more. I am sure there are others out there that will hear your story and say HEY...that sounds like my kid. As I said, regardless of diagnosis, on this board...you will find many who can say to you...yup, been there, done that! I have a MAJOR sensory integration /processing disorder kind of kiddo. Those issues are sometimes the underlying issue for him in his behaviors, other times are things that compound the behaviors. Then there are days like today, he was sooo great. I am very grateful for a day like today! again, welcome. You are not alone! [/QUOTE]
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