from what i was reading (all over the internet) was that girls tend not to be as severe as boys. and not all will have the classic facial features. I think that this is another type of diagnosis that could be easily missed because the "book" symptoms vary so much.
The info wasn't so much for me as it was to get the info out to anyone else still looking for a diagnosis.
I have a feeling that we did have her tested back in 05 and the results were neg. Still waiting to hear from the doctor on that....
