Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
Frustrated with my docs.
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="susiestar" data-source="post: 251934" data-attributes="member: 1233"><p>Well, I am back from the docs. I managed to tolerate the day in the "big city" ONLY because I spent quite a few hours at a library where I could rest on my side with my legs outstretched to let my hip bones quit hurting.</p><p></p><p>I had a decent appointment with the endocrine doctor. He left the room with-phone call from another doctor right after he came in. The resident he is working with was there. I started on HIM about the lab test I have been asking for for the last 9 months. Resident said it would be a VERY good idea, esp because we only get mitochondria from our mothers (the test is for antimitochondrial antibodies). We had a nice talk about the Vit D problem, what might be causing it, and then the doctor came in. </p><p></p><p>doctor agreed to do the test and then I wouldn't let him leave until he WROTE IT DOWN on the orders. The last 2 times I saw the rheumy he was going to order it and left the room to write things down and forgot. So I had the blood drawn and will get results in about 2 weeks. They are also doing more thyroid testing (he is doing it every 3 months) and Vit D levels. </p><p></p><p>No more shots until I hear back from the doctor. PLEASE PRAY my Vit D levels have come up and are where they need to be. If they are we may try oral Vit D to see if it will work with some Vit D in my system. If they are not up enough then we will do more shots. </p><p></p><p>Star, I would appreciate the pharmacy info. I have no problem trying methadone. I just have to get someone to rx it. Rheumy won't at this point. We tried short acting morphine, but it wasn't very helpful and then they put me on the fentanyl patches. They are AMAZING when they work. I don't think methadone deserves the stigma. It can be incredibly useful for pain relief. I have some info on a pain forum if you or DF would like it. They have VERY helpful info and are working to help get laws passed to keep chronic pain patients from being treated like addicts the way many docs treat them. One thing they explained was if you have to suddenly go off of the pain medication you can use loperamide to help prevent the withdrawal. It acts on the same receptors and can help provide relief to the worst of the withdrawal symptoms usually. Yup, immodium is good for more than one thing. They explain all the science behind it very effectively.</p><p></p><p>I didn't get the benadryl gel because it all has camphor. I do have eyedrops that are for allergies. I think I will see if that will work before I do a lot of searching for a product that doesn't have the camphor (I am VERY allergic to camphor.).</p><p></p><p>I did manage to go and get some cross stitch stuff from the specialty store I love and to go get Jessie's contacts. It was NOT fun to get a call at 8am that Jessie needed new contacts because she ripped hers and forgot to tell me last month that she didn't have any more pairs to put in when she got this pair out.</p><p></p><p>Jess gets an eye exam next week as her prescription expires tomorrow. I will get her more contacts then. ! pair SHOULD last a month, knock on wood and cross my fingers!</p><p></p><p>Thanks for all the helpful info and prayers.</p></blockquote><p></p>
[QUOTE="susiestar, post: 251934, member: 1233"] Well, I am back from the docs. I managed to tolerate the day in the "big city" ONLY because I spent quite a few hours at a library where I could rest on my side with my legs outstretched to let my hip bones quit hurting. I had a decent appointment with the endocrine doctor. He left the room with-phone call from another doctor right after he came in. The resident he is working with was there. I started on HIM about the lab test I have been asking for for the last 9 months. Resident said it would be a VERY good idea, esp because we only get mitochondria from our mothers (the test is for antimitochondrial antibodies). We had a nice talk about the Vit D problem, what might be causing it, and then the doctor came in. doctor agreed to do the test and then I wouldn't let him leave until he WROTE IT DOWN on the orders. The last 2 times I saw the rheumy he was going to order it and left the room to write things down and forgot. So I had the blood drawn and will get results in about 2 weeks. They are also doing more thyroid testing (he is doing it every 3 months) and Vit D levels. No more shots until I hear back from the doctor. PLEASE PRAY my Vit D levels have come up and are where they need to be. If they are we may try oral Vit D to see if it will work with some Vit D in my system. If they are not up enough then we will do more shots. Star, I would appreciate the pharmacy info. I have no problem trying methadone. I just have to get someone to rx it. Rheumy won't at this point. We tried short acting morphine, but it wasn't very helpful and then they put me on the fentanyl patches. They are AMAZING when they work. I don't think methadone deserves the stigma. It can be incredibly useful for pain relief. I have some info on a pain forum if you or DF would like it. They have VERY helpful info and are working to help get laws passed to keep chronic pain patients from being treated like addicts the way many docs treat them. One thing they explained was if you have to suddenly go off of the pain medication you can use loperamide to help prevent the withdrawal. It acts on the same receptors and can help provide relief to the worst of the withdrawal symptoms usually. Yup, immodium is good for more than one thing. They explain all the science behind it very effectively. I didn't get the benadryl gel because it all has camphor. I do have eyedrops that are for allergies. I think I will see if that will work before I do a lot of searching for a product that doesn't have the camphor (I am VERY allergic to camphor.). I did manage to go and get some cross stitch stuff from the specialty store I love and to go get Jessie's contacts. It was NOT fun to get a call at 8am that Jessie needed new contacts because she ripped hers and forgot to tell me last month that she didn't have any more pairs to put in when she got this pair out. Jess gets an eye exam next week as her prescription expires tomorrow. I will get her more contacts then. ! pair SHOULD last a month, knock on wood and cross my fingers! Thanks for all the helpful info and prayers. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
Frustrated with my docs.
Top