Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
has anyone dealt with Autism Spectrum Disorders (ASD) & major surgery?
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="1 Day At a Time" data-source="post: 158505" data-attributes="member: 3704"><p>S,</p><p></p><p>Our difficult child was in a serious accident 5 years ago and he had his 13th reconstructive surgery last year. He also was finally diagnosed with AS last year. This means he went through numerous procedures and hospitalizations with no one (us included) knowing what was going on. </p><p></p><p>Hind sight is 20/20 but here's what we have discovered:</p><p></p><p>We had our greatest successes at the local Children's Hospital. I highly recommend going to one if you can. Also, There is some wonderful information at O.A.S.I.S (the online Asperger Sydrome Information and Support web site) for nurses that you can print out to give them. Wow, I wish we had that 5 years ago! It was really the nurses who often didn't "get it" - but then, neither did we...</p><p></p><p>The beauty of a Children's Hospital is that they have psychiatrists and tdocs on staff -also they usually have a children's advocate or children's "life" person on staff. These folks can help out tremendously, and they can help educate the staff. </p><p></p><p>I've never been a big fan of medications, but we reached the point where we really wanted difficult child sedated whenever something "big" was coming up. The psychiatrist put him on Zoloft and it was (and is) a Godsend! We also finally figured out that we wanted to avoid constant IV sticks - so everytime he had a procedure - we had a picture line installed under sedation. That way, he was never awake for an IV stick. His docs also let him remove his own picture line when it was time to do so... That way he was in control of the situation. I was kind of shocked the first time, but it was extremely successful.</p><p></p><p>Good luck to you! I'll be thinking of you, because I know from first hand experience (one of difficult child's hospitalizations was 3 months long) just how hard it is for a child with AS to be hospitalized.</p></blockquote><p></p>
[QUOTE="1 Day At a Time, post: 158505, member: 3704"] S, Our difficult child was in a serious accident 5 years ago and he had his 13th reconstructive surgery last year. He also was finally diagnosed with AS last year. This means he went through numerous procedures and hospitalizations with no one (us included) knowing what was going on. Hind sight is 20/20 but here's what we have discovered: We had our greatest successes at the local Children's Hospital. I highly recommend going to one if you can. Also, There is some wonderful information at O.A.S.I.S (the online Asperger Sydrome Information and Support web site) for nurses that you can print out to give them. Wow, I wish we had that 5 years ago! It was really the nurses who often didn't "get it" - but then, neither did we... The beauty of a Children's Hospital is that they have psychiatrists and tdocs on staff -also they usually have a children's advocate or children's "life" person on staff. These folks can help out tremendously, and they can help educate the staff. I've never been a big fan of medications, but we reached the point where we really wanted difficult child sedated whenever something "big" was coming up. The psychiatrist put him on Zoloft and it was (and is) a Godsend! We also finally figured out that we wanted to avoid constant IV sticks - so everytime he had a procedure - we had a picture line installed under sedation. That way, he was never awake for an IV stick. His docs also let him remove his own picture line when it was time to do so... That way he was in control of the situation. I was kind of shocked the first time, but it was extremely successful. Good luck to you! I'll be thinking of you, because I know from first hand experience (one of difficult child's hospitalizations was 3 months long) just how hard it is for a child with AS to be hospitalized. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
has anyone dealt with Autism Spectrum Disorders (ASD) & major surgery?
Top