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has anyone dealt with Autism Spectrum Disorders (ASD) & major surgery?
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<blockquote data-quote="GoingNorth" data-source="post: 158512" data-attributes="member: 1963"><p>I'm an adult difficult child. I'm both AS and bipolar (and in my late 40's).</p><p></p><p>A few years ago I required emergency surgery for an intestinal obstruction...I *freaked* in the ER. It took holding me down to get in a nasogastric tube.</p><p></p><p>Sedation freaks me out because I get disoriented (I am medicated for the BiPolar (BP) and am stable)</p><p></p><p>What helped a lot was that I was able to be my own advocate. I was able to tell them not to touch me while I was sleeping. Had them put a note above and behind my bed to tell them not to touch me without talking to me and getting an acknowledgement.</p><p></p><p>I don't know if you can use it for pain control with heart surgery, but what was helpful in my case was that they could give me an epidural that numbed the surgery area, hence not so much pain medicine.</p><p></p><p>I don't mind IV sticks and will for routine blood draws for medication levels and the like, tell them which veins to use, but after two weeks in the hospital my veins started to fry out from the IVs and blood draws. </p><p></p><p>I asked them to put in a PICC line. I LOVED that thing! Mine was done under local because like I said "sticks" don't bother me, and I wanted to watch it on the flouroscope (very cool, if you are into things medical). They did mine under a local and oddly, though they numb the skin and muscle where they make the incision, you don't feel them threading the tubing into the chest vein at all.</p><p></p><p>They sedate children, etc., for PICC line installs because you must be able to hold still during them.</p><p></p><p>The PICC line usually has two "lines" built in. One is used for administering drugs and feedings (if needed) and one is used for blood draws. BOTH are absolutely painless and all you have to deal with are two small, dangling connectors that are taped to the skin. There is none of the discomfort you get with IV catheters.</p><p></p><p>The only other thing they do daily with a PICC line is to flush it with saline to make sure it doesn't block up. That is painless as well, though a bit weird as medical saline has a metallic taste. It's odd as you don't think of tasting saline solution.</p></blockquote><p></p>
[QUOTE="GoingNorth, post: 158512, member: 1963"] I'm an adult difficult child. I'm both AS and bipolar (and in my late 40's). A few years ago I required emergency surgery for an intestinal obstruction...I *freaked* in the ER. It took holding me down to get in a nasogastric tube. Sedation freaks me out because I get disoriented (I am medicated for the BiPolar (BP) and am stable) What helped a lot was that I was able to be my own advocate. I was able to tell them not to touch me while I was sleeping. Had them put a note above and behind my bed to tell them not to touch me without talking to me and getting an acknowledgement. I don't know if you can use it for pain control with heart surgery, but what was helpful in my case was that they could give me an epidural that numbed the surgery area, hence not so much pain medicine. I don't mind IV sticks and will for routine blood draws for medication levels and the like, tell them which veins to use, but after two weeks in the hospital my veins started to fry out from the IVs and blood draws. I asked them to put in a PICC line. I LOVED that thing! Mine was done under local because like I said "sticks" don't bother me, and I wanted to watch it on the flouroscope (very cool, if you are into things medical). They did mine under a local and oddly, though they numb the skin and muscle where they make the incision, you don't feel them threading the tubing into the chest vein at all. They sedate children, etc., for PICC line installs because you must be able to hold still during them. The PICC line usually has two "lines" built in. One is used for administering drugs and feedings (if needed) and one is used for blood draws. BOTH are absolutely painless and all you have to deal with are two small, dangling connectors that are taped to the skin. There is none of the discomfort you get with IV catheters. The only other thing they do daily with a PICC line is to flush it with saline to make sure it doesn't block up. That is painless as well, though a bit weird as medical saline has a metallic taste. It's odd as you don't think of tasting saline solution. [/QUOTE]
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has anyone dealt with Autism Spectrum Disorders (ASD) & major surgery?
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