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has anyone dealt with Autism Spectrum Disorders (ASD) & major surgery?
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<blockquote data-quote="fiendish" data-source="post: 158585" data-attributes="member: 5310"><p>Thank you! This is all very helpful.</p><p></p><p>I should mention that this is major open heart bypass surgery and has to be done at a children's hospital, in fact there are only a handful really qualified to do it. We have to travel 4 hours to Children's in Boston to have it done, which means we also have to be away from home for a while (which is a factor in itself).</p><p></p><p>I made him a weighted blanket a few years ago and he hates the dang thing. I should offer it up here--it's a thomas quilt, a 4 y.o. AS's dream blanket. Annoyed me no end that he hates it (we did give it many tries over several weeks).</p><p></p><p></p><p>The sign above his bed is good, although we are not planning to leave him for a minute. I am hoping they will keep him sedated for a while (they have to be sedated until they can be extubated, which depends on how they're doing after surgery. It was about 36 hours last time before he was extubated). They did give him versed (a mild sedative) before they did the IV for the MRI, so I'm sure they'll do that again. I'm really just worried about the time after he wakes up but before he can be unhooked. He'll probably be doped up on morphine too (like last time) but I'm not sure that will be enough to distract him.</p><p></p><p>I did put in a call to his pediatrician (since it will take months for the psychiatrist to see us) to ask about some kind of anxiety medications. He has been having nightmares where he screams that there is a "picture" on his arm and he wants it off. It takes forever to calm him down. On top of his normal phobia-anxiety and transition meltdowns he is also taking even longer to go to sleep (2+ hours) and is having these incredible manic episodes before going to sleep where he races around cackling and chanting to himself and we have to lie on top of him to get him to stop slamming into things. When we can get him calmed down he usually tells us he's worried about something, but can't say what it is.</p></blockquote><p></p>
[QUOTE="fiendish, post: 158585, member: 5310"] Thank you! This is all very helpful. I should mention that this is major open heart bypass surgery and has to be done at a children's hospital, in fact there are only a handful really qualified to do it. We have to travel 4 hours to Children's in Boston to have it done, which means we also have to be away from home for a while (which is a factor in itself). I made him a weighted blanket a few years ago and he hates the dang thing. I should offer it up here--it's a thomas quilt, a 4 y.o. AS's dream blanket. Annoyed me no end that he hates it (we did give it many tries over several weeks). The sign above his bed is good, although we are not planning to leave him for a minute. I am hoping they will keep him sedated for a while (they have to be sedated until they can be extubated, which depends on how they're doing after surgery. It was about 36 hours last time before he was extubated). They did give him versed (a mild sedative) before they did the IV for the MRI, so I'm sure they'll do that again. I'm really just worried about the time after he wakes up but before he can be unhooked. He'll probably be doped up on morphine too (like last time) but I'm not sure that will be enough to distract him. I did put in a call to his pediatrician (since it will take months for the psychiatrist to see us) to ask about some kind of anxiety medications. He has been having nightmares where he screams that there is a "picture" on his arm and he wants it off. It takes forever to calm him down. On top of his normal phobia-anxiety and transition meltdowns he is also taking even longer to go to sleep (2+ hours) and is having these incredible manic episodes before going to sleep where he races around cackling and chanting to himself and we have to lie on top of him to get him to stop slamming into things. When we can get him calmed down he usually tells us he's worried about something, but can't say what it is. [/QUOTE]
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has anyone dealt with Autism Spectrum Disorders (ASD) & major surgery?
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