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HELP - defining odd speech patterns
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<blockquote data-quote="Marguerite" data-source="post: 113349" data-attributes="member: 1991"><p>Trinity, I suspect he is. Temple Grandin describes her autism as "Thinking in Pictures", but I think difficult child 3 thinks in pictures with subtitles.</p><p></p><p>The problem is worse in the evenings, when he's more talkative anyway. It could be that when he's more likely to be verbally expressing each thought as it arises, that he's taking less care. He has recently changed to Concerta from taking a privately compounded SR dex. I'm about to go for a short walk (dragging him with me) to visit his younger autistic friend and his mother, so I can talk to her and compare notes. He has also recently started on Concerta (same paediatrician - I gave her the name) and I want to see how he is going.</p><p></p><p>Feedback from wrongplanet (thanks, SRL) has been a lot of "me, too" and a very useful post describing echolalia (which I understand) and palilalia (which I'd never heard of, but which seems to fit). I'm still digging into info about it.</p><p></p><p>Interesting responses there, though - crikey, some of them are really militant about labels and being considered "abnormal", "disabled" etc to such an extreme that I think they go overboard - the expectation in some cases seems to be that society has to adapt to accept THEM, they shouldn't have to make any adjustments. Unfortunately, it doesn't work that way. Fair or not, we all have to adapt to fit in because society won't change unless we make the changes ourselves. We can't sit around and exclude ourselves while waiting for change.</p><p>I've always considered myself to be a bit more supportive and militant on behalf of my children, than I know some other parents would be/have been. I don't let my kids think of themselves as disabled in any way, although I make it clear that if society is prepared to accept such a label and it can be used to their advantage, to go ahead and use it without feeling bad about themselves. I consider autism spectrum to simply be a different way of brain processing of information. It has some advantages and some disadvantages. There is no "better" or 'worse" overall, but there is clearly "difference" because the kids perceive this in themselves. Whether it is naughty, bad society which makes these kids feel different, or my bad parenting, or their own observations on their interactions with their peers - they work this out for themselves and we need to accommodate this in how we help them.</p><p></p><p>I still feel it is my job to help my kids adapt, as far as they need to to live the life they choose. </p><p></p><p>I do feel that those who refuse to acknowledge the need to adapt under any circumstances, are reducing their potential quality of life and limiting their opportunities.</p><p></p><p>I did post as much - it could be a case of "light blue touch paper, stand well back."</p><p></p><p>But they really are a fascinating lot, the range of discussions they all have.</p><p></p><p>So, info to date - lets Google "palilalia" and see if it fits.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 113349, member: 1991"] Trinity, I suspect he is. Temple Grandin describes her autism as "Thinking in Pictures", but I think difficult child 3 thinks in pictures with subtitles. The problem is worse in the evenings, when he's more talkative anyway. It could be that when he's more likely to be verbally expressing each thought as it arises, that he's taking less care. He has recently changed to Concerta from taking a privately compounded SR dex. I'm about to go for a short walk (dragging him with me) to visit his younger autistic friend and his mother, so I can talk to her and compare notes. He has also recently started on Concerta (same paediatrician - I gave her the name) and I want to see how he is going. Feedback from wrongplanet (thanks, SRL) has been a lot of "me, too" and a very useful post describing echolalia (which I understand) and palilalia (which I'd never heard of, but which seems to fit). I'm still digging into info about it. Interesting responses there, though - crikey, some of them are really militant about labels and being considered "abnormal", "disabled" etc to such an extreme that I think they go overboard - the expectation in some cases seems to be that society has to adapt to accept THEM, they shouldn't have to make any adjustments. Unfortunately, it doesn't work that way. Fair or not, we all have to adapt to fit in because society won't change unless we make the changes ourselves. We can't sit around and exclude ourselves while waiting for change. I've always considered myself to be a bit more supportive and militant on behalf of my children, than I know some other parents would be/have been. I don't let my kids think of themselves as disabled in any way, although I make it clear that if society is prepared to accept such a label and it can be used to their advantage, to go ahead and use it without feeling bad about themselves. I consider autism spectrum to simply be a different way of brain processing of information. It has some advantages and some disadvantages. There is no "better" or 'worse" overall, but there is clearly "difference" because the kids perceive this in themselves. Whether it is naughty, bad society which makes these kids feel different, or my bad parenting, or their own observations on their interactions with their peers - they work this out for themselves and we need to accommodate this in how we help them. I still feel it is my job to help my kids adapt, as far as they need to to live the life they choose. I do feel that those who refuse to acknowledge the need to adapt under any circumstances, are reducing their potential quality of life and limiting their opportunities. I did post as much - it could be a case of "light blue touch paper, stand well back." But they really are a fascinating lot, the range of discussions they all have. So, info to date - lets Google "palilalia" and see if it fits. Marg [/QUOTE]
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