Well...................
I can tell you what worked with easy child for sleep walking. I know that what Jess is doing may not be sleep walking.........but I've seen sleep walkers who you'd swear we wide awake soooo.......
After easy child went to sleep I put up baby gates. One at her bedroom door and one at the top of the stairs. I did it after she was asleep so she'd not know they were there.
When she got up to roam she would bump into the gate (although her eyes were open) and it usually was enough to prevent her from leaving her room. Because she was actually asleep......it never occurred to her to remove a gate she didn't know was there. Know what I mean?? By placing them after she went to sleep, there was not even the subconscious knowledge the gates were placed in her way. I removed them before she woke in the morning. A PITA but it kept her from hurting herself at night. Usually it was enough to send her back to bed..........at worse she'd roam around her room a while.
I hope you can find a doctor to help. I have a feeling it is either something rare or something new, otherwise they'd have thought of a diagnosis by now.
((hugs))
