I think we have actually talked about that stiff person disease in regards to J before...lol. I still think it might be the answer but getting a doctor to actually do the correct testing on Susiestar's daughter seems to be the problem. Also the fact she seems to have some form of absence seizures complicates the picture.
One thing I have noticed recently with doctor's is that they seem to have an issue especially with patients who's parents also have issues. Especially if the parents are overweight, have obvious pain and physical disabilities and heaven help you...any mental health problems. You might as well forget trying to get help for your kids. I am glad no one knew about me when my kids were young.
How close are you to that PNP center in Dallas Susie? Is there any way at all you could get her there? I am telling you that I have written to Dr Phil and gotten a response from him and if I could have gotten Buck to agree to actually go on the show they would have had us on there. Buck refused to even let me take his photo. They actually talked to me on the phone but without Buck being involved it just wouldnt be much of a show. I also couldnt see what good it would do for me and Tony to go through with it because it would just make things rougher between us. However,its possible that he could help you. Write him a letter and tell him how you have tried and tried to find out what is wrong with Jessie and you simply cant. He has a place on his website to send in an email and if they are interested they will email you back. It may take a little while but then they will send you an email with a few questions and then its fast.
