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MidwestMom 

L thanks so much, no he hasn’t had any intervention we live in middle of nowhere literally... I drove 6 hours today just to go to the chemist it’s over 600 km away, open road sitting on 100km an hour. We are in a small mining town, no Occupational Therapist (OT), no Phsyio for children only the work men, no Speech... cant afford to leave here just yet either it’s breaking my heart. 

I’m feeling the pressure to do it all yet I haven’t a clue and am sinking. 

JJ

 thanks I will make those plans with my daughter, I did let him have the tv after this about about 30mins still I shouldn’t have making it easier now will make things so much harder later I do know that I just forget and am so grateful for your post. I feel stupid that is common sense not to give in, what am I doing. I’m so overwhelmed right now we just started out 5yr with Down syndrome on seizure medication I’m so scare for him, the medications may even cause seizures it’s a wait and see thing. It’s all getting too much from every angle. I need someone to come in and write up daily plans till I can get my head around all this. We had our son 7yr old diagnoses weeks ago and I still haven’t started the Comic strips with him or any of the other stuff that was recommended. 2am here I’m not sleeping need to slap myself and pull myself together. 

 

Keista 

Thanks I didn’t think about this, I know how it fits, he was scared of the panic in the people talking even though he wasn’t watching by this stage. I should have thought to ask my daughter to watch it in her room. he is scared of lots of things, it came up as a question for us in the evaluation, was M scare of things, he is scared of everything very timid. Even tonight he asked his dad to left his bed so he could get the TV remote out, then he freaked out as he was too scared to go under incase the bed fell. Scare of noises, heights... 

That makes sense. this is important for future and how he treats people... He seemed to show this even the next day today, he said sorry to 17yr old because he wanted her to look after him while I was out, then he told her why he did it, “I hit you because that show made me angry” 

This is a nightmare I’m not up to this but have to be, or I’ll have another teenager with no respect for anyone but himself. I cant seem to raise boys L think it’s harder as I see the future and not sure I can make the changes to make any difference. 

 Thanks for your plan Prevention, clean up and if it happens again. It will happen again just hope it’s not so full on. 

 

TeDo 

Thinking about this I think it was like he said but the build up or noise from the camp he did say when I picked him up he was “frustrated” I guess now when he came home, he knew what he needed was to chill out I should have sent him to his room for a movie, then he would have fallen asleep. 

Hope i can think before hand I just seem to not think things through surely I will get there, hope so for all our sakes. 

 

DaisyFace 

you summed that up well, I had started to think like this today, then had so much on my mind I didn’t ‘ full think it through. I have some planning to do. I have no idea what he could do though. 

Would going on the Ipad to play games help? Though he often seems to obsess over video games and there is a melt down after them. Think I answered that question hmm. 

InsaneCdn

 yep that is it. 

 

Thanks to everyone I love this site your all so wonderful 


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