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HOW in the WORLD does this make sense?
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<blockquote data-quote="InsaneCdn" data-source="post: 459103" data-attributes="member: 11791"><p>Susie...</p><p>by the way - I'm on your side - we went through a whole stage where everything got blamed on "all in his head"... now? we've got dxes. But... its tough. (NOT the same kinds of issues, but... the whole medical/psychological standoff? yup)</p><p></p><p>Between you and the family doctor, you need to find every possible test that can logically be run <u>without a specialist's order</u>. Gather all info ahead of time. Rule in and/or rule out... like Steely said, potasium? (that's bloodwork, if I remember right). Get the family doctor to take the investigation as far as possible. THEN when he asks for a referral, the letter will say ... and we ruled out x, y and z, and we see these anomalies on tests c, d, and f... Know what I mean??</p><p></p><p>And THEN - do not refer to a specialist. See if you can get into a children's hospital. This is an "unusual" case, and may take a team approach.</p><p></p><p>Fiddle-sticks. If $$ isn't an issue, call Mayo. Tell them you're not getting answers, and need a start-over evaluation - a fresh look at the WHOLE spectrum, including re-evaluation of any prior dxes.</p></blockquote><p></p>
[QUOTE="InsaneCdn, post: 459103, member: 11791"] Susie... by the way - I'm on your side - we went through a whole stage where everything got blamed on "all in his head"... now? we've got dxes. But... its tough. (NOT the same kinds of issues, but... the whole medical/psychological standoff? yup) Between you and the family doctor, you need to find every possible test that can logically be run [U]without a specialist's order[/U]. Gather all info ahead of time. Rule in and/or rule out... like Steely said, potasium? (that's bloodwork, if I remember right). Get the family doctor to take the investigation as far as possible. THEN when he asks for a referral, the letter will say ... and we ruled out x, y and z, and we see these anomalies on tests c, d, and f... Know what I mean?? And THEN - do not refer to a specialist. See if you can get into a children's hospital. This is an "unusual" case, and may take a team approach. Fiddle-sticks. If $$ isn't an issue, call Mayo. Tell them you're not getting answers, and need a start-over evaluation - a fresh look at the WHOLE spectrum, including re-evaluation of any prior dxes. [/QUOTE]
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HOW in the WORLD does this make sense?
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