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<blockquote data-quote="susiestar" data-source="post: 457076" data-attributes="member: 1233"><p>Lisa, this man is your mate. The one who has been there through it all for you. The one you gave up all other men for. The father of your children. </p><p></p><p>Let someone else care for your pets for a few days - does not MATTER who. </p><p></p><p><strong>Please go and stay with Step.</strong></p><p></p><p>I am worried. I just have this feeling that if you are not there with him more that they are going to miss things that are really important. Your husband is autistic. He CANNOT tell them what he is feeling in a way they will grasp. He NEEDS you with him as much as is humanly possible. Just like Travis needs his cane and needs to not mow the yard. </p><p></p><p>You also need to find the hospital's patient advocate or patient rep or ombudsman. Usually NOT called an ombudsman. THis is the person who is familiar iwth how the hospital works who can go and say "This family needs the docs to tell them more. You, doctor, haven't answered the questions they asked and they are upset. They need you to speak with the wife who can't be here because the patient is autistic and is incapable of expressing himself the way he is supposed to." </p><p></p><p>This person can likely be found through the head nursing office or the head admin office or the operator. I know all the hospitals here have them and when we lived in cincy the hospitals there had them and when I had friends/relatives/employees having surgery the hospitals around Dayton had them. So . . . . this is a person who can really be on your and husband's side and push the docs to spend the time to explain to you so you can explain to husband.</p><p></p><p>Now, how long a drive is it in miles to Steps and to the hospital from your home? Also, can you pm me the name of the hospital that husband is in? </p><p></p><p>You are all in my prayers all day. PLEASE, don't let pride keep you from spending this time iwth husband. Not only does he NEED you, you need him right now. What, exactly, will your pride over not taking help during this mean to you if the worst happens? In a year, in five years, what would you feel about that decision to not accept a room at Step's?</p></blockquote><p></p>
[QUOTE="susiestar, post: 457076, member: 1233"] Lisa, this man is your mate. The one who has been there through it all for you. The one you gave up all other men for. The father of your children. Let someone else care for your pets for a few days - does not MATTER who. [B]Please go and stay with Step.[/B] I am worried. I just have this feeling that if you are not there with him more that they are going to miss things that are really important. Your husband is autistic. He CANNOT tell them what he is feeling in a way they will grasp. He NEEDS you with him as much as is humanly possible. Just like Travis needs his cane and needs to not mow the yard. You also need to find the hospital's patient advocate or patient rep or ombudsman. Usually NOT called an ombudsman. THis is the person who is familiar iwth how the hospital works who can go and say "This family needs the docs to tell them more. You, doctor, haven't answered the questions they asked and they are upset. They need you to speak with the wife who can't be here because the patient is autistic and is incapable of expressing himself the way he is supposed to." This person can likely be found through the head nursing office or the head admin office or the operator. I know all the hospitals here have them and when we lived in cincy the hospitals there had them and when I had friends/relatives/employees having surgery the hospitals around Dayton had them. So . . . . this is a person who can really be on your and husband's side and push the docs to spend the time to explain to you so you can explain to husband. Now, how long a drive is it in miles to Steps and to the hospital from your home? Also, can you pm me the name of the hospital that husband is in? You are all in my prayers all day. PLEASE, don't let pride keep you from spending this time iwth husband. Not only does he NEED you, you need him right now. What, exactly, will your pride over not taking help during this mean to you if the worst happens? In a year, in five years, what would you feel about that decision to not accept a room at Step's? [/QUOTE]
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