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<blockquote data-quote="B’smom" data-source="post: 751333" data-attributes="member: 23359"><p>He has periods during the day when he’s calm and seems to be able to control himself. When he’s in school and there’s structure and routine, it’s somewhat better but anything can set him off. But he’s very inconsistent, you can ask him to do something one day, and he’s fine. The next day, that same request will set off a two hour meltdown. </p><p>I think him being home with me 24/7 changed it. I’m just always the “bad guy”, there’s no one else to be the bad guy.</p><p></p><p>He looks like a typical child. When he speaks, you can hear the apraxia so I that typically tells people “something isn’t right”. He walks “funny” because of his Dysapraxia (I believe that’s the American word/diagnosis for it). Basically it’s the clumsy child syndrome. </p><p>He gets into these fits of laughter though, for what appears to be for no reason. I hate to say it, but it creeps me out He has Obsessive Compulsive Disorder (OCD) according to some doctors, so things have to be set a certain way, he repeats words over and over again (in 3’s) when he’s upset/angry “ok ok ok” “I know I know I know” etc. The neuropsychologist said his ability to process change is so low, it cannot be compared to the general public. </p><p></p><p>He used to suffer from constant strep infections. We had his tonsils removed and he’s been fine since. I have brought up the possible diagnosis of PANDAS/PANS but the response I get from all doctors is that it’s controversial. Even the neuropsychologist said it’s a controversial diagnosis but it could fit what’s going on. I emailed last week and finally got a response today. He also mentioned that childhood disintegrative disorder fits what is going on but it was removed from the DSM. Told me to focus on the findings vs the labels. Told him without a label, I cannot get intervention. He told me he’d try to fit me in with the person working under him. Which I guess is something. It’s still over an hour away. He said I’d probably be able to find a doctor who would diagnose him with autism but that so many other diagnoses are better to explain what’s going on.</p></blockquote><p></p>
[QUOTE="B’smom, post: 751333, member: 23359"] He has periods during the day when he’s calm and seems to be able to control himself. When he’s in school and there’s structure and routine, it’s somewhat better but anything can set him off. But he’s very inconsistent, you can ask him to do something one day, and he’s fine. The next day, that same request will set off a two hour meltdown. I think him being home with me 24/7 changed it. I’m just always the “bad guy”, there’s no one else to be the bad guy. He looks like a typical child. When he speaks, you can hear the apraxia so I that typically tells people “something isn’t right”. He walks “funny” because of his Dysapraxia (I believe that’s the American word/diagnosis for it). Basically it’s the clumsy child syndrome. He gets into these fits of laughter though, for what appears to be for no reason. I hate to say it, but it creeps me out He has Obsessive Compulsive Disorder (OCD) according to some doctors, so things have to be set a certain way, he repeats words over and over again (in 3’s) when he’s upset/angry “ok ok ok” “I know I know I know” etc. The neuropsychologist said his ability to process change is so low, it cannot be compared to the general public. He used to suffer from constant strep infections. We had his tonsils removed and he’s been fine since. I have brought up the possible diagnosis of PANDAS/PANS but the response I get from all doctors is that it’s controversial. Even the neuropsychologist said it’s a controversial diagnosis but it could fit what’s going on. I emailed last week and finally got a response today. He also mentioned that childhood disintegrative disorder fits what is going on but it was removed from the DSM. Told me to focus on the findings vs the labels. Told him without a label, I cannot get intervention. He told me he’d try to fit me in with the person working under him. Which I guess is something. It’s still over an hour away. He said I’d probably be able to find a doctor who would diagnose him with autism but that so many other diagnoses are better to explain what’s going on. [/QUOTE]
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