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i gotta vent again
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<blockquote data-quote="Farmwife" data-source="post: 387417" data-attributes="member: 8617"><p>I'm glad you recognize the reality of your situation. I know, I know, you are knee deep in reality every day...</p><p> </p><p>It's been a long few weeks for you and difficult child. I have seen you post a lot of high drama events and am yet to see you find any real solutions or help. I don't mean to be snarky by any means. Just concerned and lost track of what your plan is, is there a plan? What are you still waiting on? Obviously your difficult child is very very ill and needs care that is beyond even a superhero parents abilities. She needs help, you need help. </p><p> </p><p>I guess I am confused what the delay is to get her a higher level of care. Insurance? Dr approval? Last I recall you were waiting for a certain doctor to feel things were serious enough to step it up a notch. That confuses me even more because anyone with common sense would see that things are at a very critical point and have remained so for quite some time. I'm not sure if waiting for her to either need a feeding tube or eat a couple hundred calories more is going to solve the real issues at hand. It may keep her alive but there is so so so much more to be sorted out.</p><p> </p><p>I know you are tired so basic things like making a shopping list or remembering if difficult child brushed her teeth can feel like climbing everest. I have been in that autopilot through hades with brain like swiss cheese zone. I get it! So what do you need to do to regroup and move forward? This just can't keep going on forever.</p><p> </p><p>Have you started a daily log of her needs/behaviors etc. Maybe if you had a hard copy of what really is happening and could present it to docs in black and white it may help. So much is lost in a conversation of 5 minutes with medication staff when we are burnt out. Example: 9 a.m. woke up groggy, said hungry 9:30 a.m. feels sick to stomach, refuses to eat 9:45 anxiety attack when breakfast mentioned ect. ect.</p><p> </p><p>Is it perhaps time for a second, third or tenth opinion or a doctor switch? So far from what I have seen your current doctor has done almost nothing to help you and you have been in crisis for how long now? Well over a month as far as I can tell. Heck, even a 3 month wait to see a new doctor seems like small potatoes now...you aren't getting the right answers so maybe you need to ask better questions or ask different people but this stuff has to end for your and your difficult child's own good.</p></blockquote><p></p>
[QUOTE="Farmwife, post: 387417, member: 8617"] I'm glad you recognize the reality of your situation. I know, I know, you are knee deep in reality every day... It's been a long few weeks for you and difficult child. I have seen you post a lot of high drama events and am yet to see you find any real solutions or help. I don't mean to be snarky by any means. Just concerned and lost track of what your plan is, is there a plan? What are you still waiting on? Obviously your difficult child is very very ill and needs care that is beyond even a superhero parents abilities. She needs help, you need help. I guess I am confused what the delay is to get her a higher level of care. Insurance? Dr approval? Last I recall you were waiting for a certain doctor to feel things were serious enough to step it up a notch. That confuses me even more because anyone with common sense would see that things are at a very critical point and have remained so for quite some time. I'm not sure if waiting for her to either need a feeding tube or eat a couple hundred calories more is going to solve the real issues at hand. It may keep her alive but there is so so so much more to be sorted out. I know you are tired so basic things like making a shopping list or remembering if difficult child brushed her teeth can feel like climbing everest. I have been in that autopilot through hades with brain like swiss cheese zone. I get it! So what do you need to do to regroup and move forward? This just can't keep going on forever. Have you started a daily log of her needs/behaviors etc. Maybe if you had a hard copy of what really is happening and could present it to docs in black and white it may help. So much is lost in a conversation of 5 minutes with medication staff when we are burnt out. Example: 9 a.m. woke up groggy, said hungry 9:30 a.m. feels sick to stomach, refuses to eat 9:45 anxiety attack when breakfast mentioned ect. ect. Is it perhaps time for a second, third or tenth opinion or a doctor switch? So far from what I have seen your current doctor has done almost nothing to help you and you have been in crisis for how long now? Well over a month as far as I can tell. Heck, even a 3 month wait to see a new doctor seems like small potatoes now...you aren't getting the right answers so maybe you need to ask better questions or ask different people but this stuff has to end for your and your difficult child's own good. [/QUOTE]
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