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I Just Can't Seem To Get a Break
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<blockquote data-quote="susiestar" data-source="post: 201275" data-attributes="member: 1233"><p>Stella,</p><p> </p><p>I am sorry you are dealing with this. When i first read about the idiot surgeon waiting 5 days to do the surgery I was worried about something like RSD coming to stay with you.</p><p> </p><p>The current thought of the "best" medication to treat the nerve pain is lyrica. I am on it and I LOVE it. It really makes a difference. It is supposedly the "next generation" of neurontin. It is an anti seizure medication, like topomax and neurontin, and not everyone tolerates it. I believe Dammit Janet doesn't do well with it, whereas I do very well with-it.</p><p> </p><p>RSDS is a scary diagnosis. I hate that you are facing it. I have a friend who was diagnosis'd with it in high school after knee surgery to repair something damaged in a cheerleading accident (seh was the one on the top of the pyramid). My friend has had problems all her life from this. It is very important to find a doctor who LISTENS to you and who you feel is responsive.</p><p> </p><p>I hope they can find a simple thing to fix and it is not RSD. If it IS, I hope and pray that you can find effective treatment and be pain-free very soon.</p><p> </p><p>If heat helps, sew a few hand towels together, fill with rice, dried beans, even dried corn from the feed mill. Then sew it shut, and microwave. I have even microwaved these in truck stops while travelling, or at work. I sometimes put eucalyptus leaves, mint from mint tea bags, or lavendar flowers in with the filling. It provides a soothing scent when heated. </p><p> </p><p>Hugs, I KNOW this is scary. Remember it is scary for S also. Be sure to reassure her that you are not going to die from this. As a child who's mom got a chronic disease diagnosis, I remember that fear. It was a very strong fear, and I had 2 parents who were married. It will be stronger for S than it was for me. </p><p> </p><p>Be sure you are reading CURRENT info on RSD. For most diseases, the literature from 10 years ago is very different from the literature today. My mom was diagnosis'd lupus when I was a teen. My bro was in the army and read the stuff the base library had on lupus. He then went to get compassionate leave through the Red Cross because according to the literature she was going to DIE - SOON. What he was reading was 5 yrs old at the time. And the docs already KNEW it was wrong, that the disease would NOT shorten her lifespan like that. But the only info my bro could find said it would. So he was terrified. </p><p> </p><p>So make sure you ahve the LATEST info, not the old info. Andhugs to you and S.</p><p> </p><p>If S wants to talk to soemone who had her mom get a chronic pain diagnosis, I will talk/email/PM with her.</p></blockquote><p></p>
[QUOTE="susiestar, post: 201275, member: 1233"] Stella, I am sorry you are dealing with this. When i first read about the idiot surgeon waiting 5 days to do the surgery I was worried about something like RSD coming to stay with you. The current thought of the "best" medication to treat the nerve pain is lyrica. I am on it and I LOVE it. It really makes a difference. It is supposedly the "next generation" of neurontin. It is an anti seizure medication, like topomax and neurontin, and not everyone tolerates it. I believe Dammit Janet doesn't do well with it, whereas I do very well with-it. RSDS is a scary diagnosis. I hate that you are facing it. I have a friend who was diagnosis'd with it in high school after knee surgery to repair something damaged in a cheerleading accident (seh was the one on the top of the pyramid). My friend has had problems all her life from this. It is very important to find a doctor who LISTENS to you and who you feel is responsive. I hope they can find a simple thing to fix and it is not RSD. If it IS, I hope and pray that you can find effective treatment and be pain-free very soon. If heat helps, sew a few hand towels together, fill with rice, dried beans, even dried corn from the feed mill. Then sew it shut, and microwave. I have even microwaved these in truck stops while travelling, or at work. I sometimes put eucalyptus leaves, mint from mint tea bags, or lavendar flowers in with the filling. It provides a soothing scent when heated. Hugs, I KNOW this is scary. Remember it is scary for S also. Be sure to reassure her that you are not going to die from this. As a child who's mom got a chronic disease diagnosis, I remember that fear. It was a very strong fear, and I had 2 parents who were married. It will be stronger for S than it was for me. Be sure you are reading CURRENT info on RSD. For most diseases, the literature from 10 years ago is very different from the literature today. My mom was diagnosis'd lupus when I was a teen. My bro was in the army and read the stuff the base library had on lupus. He then went to get compassionate leave through the Red Cross because according to the literature she was going to DIE - SOON. What he was reading was 5 yrs old at the time. And the docs already KNEW it was wrong, that the disease would NOT shorten her lifespan like that. But the only info my bro could find said it would. So he was terrified. So make sure you ahve the LATEST info, not the old info. Andhugs to you and S. If S wants to talk to soemone who had her mom get a chronic pain diagnosis, I will talk/email/PM with her. [/QUOTE]
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