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I just wanna say Sorry
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<blockquote data-quote="Marguerite" data-source="post: 81495" data-attributes="member: 1991"><p>I know the "stoned" feeling - I hate it. It also seems to hit my throat muscles and I feel like I can't swallow properly or hold me head up straight. It has happened to me when I've taken more pain medications than I needed - this can happen by accident if you accidentally double-dose, or more often in the early days of my illness, the pain was easier to knock than I had estimated.</p><p></p><p>I've been told, and it seems that way with me, that when you match the pain medications to the pain, you shouldn't feel stoned. I'm not sure if that's the rule for everybody, but it is for me. </p><p></p><p>When I was first put on morphine, it did sometimes sedate me. At the same time, it also knocked the pain COMPLETELY - now THAT is something I'd love to get used to. But as I eased the dose back to what I needed, I found the morphine no longer sedated me, and I was also getting a small amount of breakthrough pain.</p><p></p><p>So now I plan on always having some pain and find other ways to keep it under control - meditation, visualisation, relaxation - they all help a certain amount. It's a constant tightrope walk, but with experience I'm getting good at it.</p><p></p><p>I remember years ago when I was otherwise healthy, I had kidney surgery. I don't know what they gave me, but it put me to sleep. However, it stopped being so effective after a few days and I was asking for the injections more often. They finally refused more injections and I felt myself panicking - could I handle the pain? But then they gave me some oral medications which were amazingly effective - I think it must have been the paracetamol-codeine combination I take now for breakthrough. And once I was not sedated, I was able to do more for myself physically. I was only 20, I was healing fast once I could get moving.</p><p></p><p>Not so now. I was at a conference for fibromyalgia and CFS some years ago. One of the speakers commented that he had never seen a room full of people so intently listening, but so physically still. This is a condition which discourages movement. Even in sleep, I do not move unless I wake to do so. The natural tendency is to be as still as possible, which is not healthy. But it hurts to BEGIN to move. Very hard to explain.</p><p></p><p>GG, I really don't know what you can do for your mother that you haven't already done. Besides asking your own doctor for advice, you can't intervene. She is a free agent, legally considered capable of making her own decisions. But if she really wants her pain eased she should welcome any suggestions on pain management, as long as they don't require her to stop her current medications. A vibrating pillow; a TENS machine; a voucher for massage; maybe worth suggesting.</p><p></p><p>All the best with it.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 81495, member: 1991"] I know the "stoned" feeling - I hate it. It also seems to hit my throat muscles and I feel like I can't swallow properly or hold me head up straight. It has happened to me when I've taken more pain medications than I needed - this can happen by accident if you accidentally double-dose, or more often in the early days of my illness, the pain was easier to knock than I had estimated. I've been told, and it seems that way with me, that when you match the pain medications to the pain, you shouldn't feel stoned. I'm not sure if that's the rule for everybody, but it is for me. When I was first put on morphine, it did sometimes sedate me. At the same time, it also knocked the pain COMPLETELY - now THAT is something I'd love to get used to. But as I eased the dose back to what I needed, I found the morphine no longer sedated me, and I was also getting a small amount of breakthrough pain. So now I plan on always having some pain and find other ways to keep it under control - meditation, visualisation, relaxation - they all help a certain amount. It's a constant tightrope walk, but with experience I'm getting good at it. I remember years ago when I was otherwise healthy, I had kidney surgery. I don't know what they gave me, but it put me to sleep. However, it stopped being so effective after a few days and I was asking for the injections more often. They finally refused more injections and I felt myself panicking - could I handle the pain? But then they gave me some oral medications which were amazingly effective - I think it must have been the paracetamol-codeine combination I take now for breakthrough. And once I was not sedated, I was able to do more for myself physically. I was only 20, I was healing fast once I could get moving. Not so now. I was at a conference for fibromyalgia and CFS some years ago. One of the speakers commented that he had never seen a room full of people so intently listening, but so physically still. This is a condition which discourages movement. Even in sleep, I do not move unless I wake to do so. The natural tendency is to be as still as possible, which is not healthy. But it hurts to BEGIN to move. Very hard to explain. GG, I really don't know what you can do for your mother that you haven't already done. Besides asking your own doctor for advice, you can't intervene. She is a free agent, legally considered capable of making her own decisions. But if she really wants her pain eased she should welcome any suggestions on pain management, as long as they don't require her to stop her current medications. A vibrating pillow; a TENS machine; a voucher for massage; maybe worth suggesting. All the best with it. Marg [/QUOTE]
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