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I love my son BUT
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<blockquote data-quote="Marguerite" data-source="post: 81488" data-attributes="member: 1991"><p>The IEP - I can't understand why they say they won't do it any more. From what I saw, they didn't do it last time either. And you DO need to be there, they can't say you're not needed, because YOU have to sign off on the funding and also you're supposed to have your own copy of the IEP.</p><p></p><p>The special class - go for it if you can get him in. It is the best chance regarding school, by the sound of it. I didn't know there was one anywhere near you, that's marvellous. I know of two possibles, both I would have thought way too far away from you. If they offer you Peakhurst, grab it. I know the principal there, she's amazing. But chances are, it's a totally new class placement since I last was "in the market". DET seem to be finally getting the message that a lot of kids with autism simply aren't coping in a full-on mainstream class - and neither are the teachers.</p><p></p><p>The video taping - if having a tape running means he is behaving for the camera, then keep taping. At least he is behaving! If he misbehaves, you have a record of it; if he behaves, you get a break. It's win-win.</p><p></p><p>The letter-writing - I would love to help, I could send you a sort pf pro-forma, something you could use as a template, and also work out a list of your own people to write to. Once you have one letter written, the rest are easier because you pick up the pattern quickly. PM me or phone me if you have the time/energy/inclination to have a go. I will understand if the thought is too overwhelming, but I am ready to help when you feel you have the strength.</p><p></p><p>The counsellor - is she psychologist or psychiatrist? I gather she's through a Community Health kind of clinic? I haven't heard of the name you mention and I can't ask easy child this minute, she's already in bed and asleep for the night.</p><p>But whichever it is, you should be able to access a psychiatrist through Medicare (for either of you) and if you get a referral from your GP, you should also be able to get a block of psychologist appointments for either of you. And if an appointment gets missed (because of you, or her) then this doesn't come out of your allotment the way it often does with Community Health (we had that experience with Speech Pathology with difficult child 3).</p><p></p><p>Allergies - I may have already suggested this, but have you contacted the Allergy Clinic at RPA? They have a unit which is working with food sensitivities and allergies in kids with a diagnosis of autism. Or do I recall you tried there already and had problems? If so, ignore the suggestion. To get to RPA you can go by train to Newtown or Redfern, or you can drive and they give you a parking voucher for free parking at the parking station below the medical centre. It's all bulk-billed, too.</p><p></p><p>Another suggestion - join the ASPECT forum and ask a few questions there which are more specifically relevant to a kid with an autism diagnosis in Australia. They might be able to point you to the info regarding your rights concerning IEP, for example, and other issues regarding education. Also, if you are a member of ASPECT you can register for Metropolitan Outreach. Ring them first and ask if this applies to where you live.</p><p></p><p>All you need now is the energy to do all of this, somewhere in your ample relaxation time!</p><p></p><p>Just one step at a time, one fragment at a time.It's all you can do. Don't feel guilty about what you can't manage, you have a great deal to cope with.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 81488, member: 1991"] The IEP - I can't understand why they say they won't do it any more. From what I saw, they didn't do it last time either. And you DO need to be there, they can't say you're not needed, because YOU have to sign off on the funding and also you're supposed to have your own copy of the IEP. The special class - go for it if you can get him in. It is the best chance regarding school, by the sound of it. I didn't know there was one anywhere near you, that's marvellous. I know of two possibles, both I would have thought way too far away from you. If they offer you Peakhurst, grab it. I know the principal there, she's amazing. But chances are, it's a totally new class placement since I last was "in the market". DET seem to be finally getting the message that a lot of kids with autism simply aren't coping in a full-on mainstream class - and neither are the teachers. The video taping - if having a tape running means he is behaving for the camera, then keep taping. At least he is behaving! If he misbehaves, you have a record of it; if he behaves, you get a break. It's win-win. The letter-writing - I would love to help, I could send you a sort pf pro-forma, something you could use as a template, and also work out a list of your own people to write to. Once you have one letter written, the rest are easier because you pick up the pattern quickly. PM me or phone me if you have the time/energy/inclination to have a go. I will understand if the thought is too overwhelming, but I am ready to help when you feel you have the strength. The counsellor - is she psychologist or psychiatrist? I gather she's through a Community Health kind of clinic? I haven't heard of the name you mention and I can't ask easy child this minute, she's already in bed and asleep for the night. But whichever it is, you should be able to access a psychiatrist through Medicare (for either of you) and if you get a referral from your GP, you should also be able to get a block of psychologist appointments for either of you. And if an appointment gets missed (because of you, or her) then this doesn't come out of your allotment the way it often does with Community Health (we had that experience with Speech Pathology with difficult child 3). Allergies - I may have already suggested this, but have you contacted the Allergy Clinic at RPA? They have a unit which is working with food sensitivities and allergies in kids with a diagnosis of autism. Or do I recall you tried there already and had problems? If so, ignore the suggestion. To get to RPA you can go by train to Newtown or Redfern, or you can drive and they give you a parking voucher for free parking at the parking station below the medical centre. It's all bulk-billed, too. Another suggestion - join the ASPECT forum and ask a few questions there which are more specifically relevant to a kid with an autism diagnosis in Australia. They might be able to point you to the info regarding your rights concerning IEP, for example, and other issues regarding education. Also, if you are a member of ASPECT you can register for Metropolitan Outreach. Ring them first and ask if this applies to where you live. All you need now is the energy to do all of this, somewhere in your ample relaxation time! Just one step at a time, one fragment at a time.It's all you can do. Don't feel guilty about what you can't manage, you have a great deal to cope with. Marg [/QUOTE]
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