Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
I Saw The Latest One
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="susiestar" data-source="post: 411676" data-attributes="member: 1233"><p>Going into the neuro's office to wait for an answer would be futile. they would be VERY likely to either refuse to see us or to call security. I wish I was joking. This neuro is positive he is the top in the world and he has no time for "urgent" questions or pushy parents. I am pushy enough during appts to put him on edge. This is the third pediatrician neuro practice we have gone to and there are NO MORE in our state. The other two simply were "not interested" in treating Jess. We were willing to do everything they asked, but we also wanted to have what seemed like basic testing done (tests that when we went to the ER the docs told us to have the neuro run - not stuff we dreamed up or researched on our own - stuff that the neuro on call in the ER told them to tell us to ask for. Actually, our neuro is the one who the residents in the ER called. So it was HIS advice that he got angry with us for insisting on. The first neuro claimed an insurance problem after stringing us along with cancelling appts for over 9 months. Then the next neuro actually used the words "just not interested in treating Jessica" - would not even do a short eeg or basic MRI.</p><p> </p><p>So we ended up with the current neuro and we have searched for another one. Dallas is where we would end up going and we just cannot go there for treatment every few months. </p><p> </p><p>The Dallas neuro took her off of lamictal in Nov because the 24hr eeg that he did showed NO seizure activity. She took the last dose of lamictal a few hours before he started it, but we had seen some seizure like activity in the months before then even though she was on lamictal. OF course the things that looked like long absence seizures were NOT daily or even weekly, just every once in a while we would notice it. But she had no absence seizures during the 24hr eeg so the doctor insisted she had outgrown the absence epilepsy. He wouldn't even stay in the room long enough to explain how the eeg could show seizures if seh had lamictal in her system. </p><p> </p><p>The nurses didn't know why he was saying that but said he is really good so he must be right, even though it didn't seem logical.</p><p> </p><p>I feel so helpless. I just want to cry. I have a feeling that if we were in Cincy we would not have this problem - I have never heard of anyone at Cincy Children's acting this way. We ended up with a lot of different docs there and tehy all, even the neuro we saw with Wiz, listened and answered questions and were LOGICAL. </p><p> </p><p>I will be calling that place tomorrow, Star. Thank you. I am also goign to raise some heck with the neuro - if he refuses to see us as a patient then i will call the head of the hospital and ask THEM why. Cause my kid deserves better than this. We never said we wouldn't get psychiatric care for the shaking that the neuros insist is pychological. Our questioning that came from having a pediatrician who says everything wrong with a teen female needs psychiatrist treatment (almost literally - she is now being investigated for this per a nurse in her office that is a friend). Then further questioning came from the tdocs we worked iwth saying they didn't think it was anxiety because it didn't act like any psychiatric induced illness they had seen. So far 3 different ones have said this. The one psychiatrist we saw is now out of business with-no explanation so we are searchng for another one, but that is another headache with our insurance.</p><p> </p><p>Thanks for letting me vent here. It will terrify Jess if she sees me upset about this. She is scared enough that I have to be reassuring to her. husband is freaking out also, which is NOT helping her. I know if the docs try to say they cannot see us because insurance we will get my dad to pay cash. He has already said he would, even though I have not said this latest development. He is ****** majorly at the docs. mom won't let him go with us because he would really upset this guy adn my mom asked questions a year ago when she came with us - and he said if we brought her back he wouldn't treat Jess anymore.</p><p></p><p>Why are these docs so upset by logical, politely asked questions? Am I in a time warp back to the 1950s when docs were always right and never to be questioned? Every other doctor I know encourages patients and family to ask questions. Of course I just had a doctor refuse to see me because I was sick, so maybe I AM in some parallel universe or alternate dimension here in OK.</p></blockquote><p></p>
[QUOTE="susiestar, post: 411676, member: 1233"] Going into the neuro's office to wait for an answer would be futile. they would be VERY likely to either refuse to see us or to call security. I wish I was joking. This neuro is positive he is the top in the world and he has no time for "urgent" questions or pushy parents. I am pushy enough during appts to put him on edge. This is the third pediatrician neuro practice we have gone to and there are NO MORE in our state. The other two simply were "not interested" in treating Jess. We were willing to do everything they asked, but we also wanted to have what seemed like basic testing done (tests that when we went to the ER the docs told us to have the neuro run - not stuff we dreamed up or researched on our own - stuff that the neuro on call in the ER told them to tell us to ask for. Actually, our neuro is the one who the residents in the ER called. So it was HIS advice that he got angry with us for insisting on. The first neuro claimed an insurance problem after stringing us along with cancelling appts for over 9 months. Then the next neuro actually used the words "just not interested in treating Jessica" - would not even do a short eeg or basic MRI. So we ended up with the current neuro and we have searched for another one. Dallas is where we would end up going and we just cannot go there for treatment every few months. The Dallas neuro took her off of lamictal in Nov because the 24hr eeg that he did showed NO seizure activity. She took the last dose of lamictal a few hours before he started it, but we had seen some seizure like activity in the months before then even though she was on lamictal. OF course the things that looked like long absence seizures were NOT daily or even weekly, just every once in a while we would notice it. But she had no absence seizures during the 24hr eeg so the doctor insisted she had outgrown the absence epilepsy. He wouldn't even stay in the room long enough to explain how the eeg could show seizures if seh had lamictal in her system. The nurses didn't know why he was saying that but said he is really good so he must be right, even though it didn't seem logical. I feel so helpless. I just want to cry. I have a feeling that if we were in Cincy we would not have this problem - I have never heard of anyone at Cincy Children's acting this way. We ended up with a lot of different docs there and tehy all, even the neuro we saw with Wiz, listened and answered questions and were LOGICAL. I will be calling that place tomorrow, Star. Thank you. I am also goign to raise some heck with the neuro - if he refuses to see us as a patient then i will call the head of the hospital and ask THEM why. Cause my kid deserves better than this. We never said we wouldn't get psychiatric care for the shaking that the neuros insist is pychological. Our questioning that came from having a pediatrician who says everything wrong with a teen female needs psychiatrist treatment (almost literally - she is now being investigated for this per a nurse in her office that is a friend). Then further questioning came from the tdocs we worked iwth saying they didn't think it was anxiety because it didn't act like any psychiatric induced illness they had seen. So far 3 different ones have said this. The one psychiatrist we saw is now out of business with-no explanation so we are searchng for another one, but that is another headache with our insurance. Thanks for letting me vent here. It will terrify Jess if she sees me upset about this. She is scared enough that I have to be reassuring to her. husband is freaking out also, which is NOT helping her. I know if the docs try to say they cannot see us because insurance we will get my dad to pay cash. He has already said he would, even though I have not said this latest development. He is ****** majorly at the docs. mom won't let him go with us because he would really upset this guy adn my mom asked questions a year ago when she came with us - and he said if we brought her back he wouldn't treat Jess anymore. Why are these docs so upset by logical, politely asked questions? Am I in a time warp back to the 1950s when docs were always right and never to be questioned? Every other doctor I know encourages patients and family to ask questions. Of course I just had a doctor refuse to see me because I was sick, so maybe I AM in some parallel universe or alternate dimension here in OK. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
I Saw The Latest One
Top