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I see neurologist tomorrow.... UPDATE
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<blockquote data-quote="Marguerite" data-source="post: 100873" data-attributes="member: 1991"><p>Hang in there, Linda. I hope the neuro decides to go conservative for a while. I agree, too many people sampling bits isn't always helpful. But don't be too upset by symptomatic treatment - sometimes it's the best policy, even when you know what the problem is. It's symptomatic treatment that has done the best for me.</p><p></p><p>If it's myasthenia, it can be hard to diagnose for sure (a blood test for AcCh receptor antibodies should be done, but it does sometimes come back negative) but a Tensilon test should be fast and definitive. It IS something for a neuro to do. I've never had a Tensilon test, they have never been sufficiently suspicious of MG to do it to me. The effect of it if you DON'T need it - it can affect your heart rate for a few minutes, slow it down. I'm not sure on that one, it's such a short-acting test it may have absolutely no effect on the heart. But if you DO need it - you will suddenly feel alive, energised, strong - but only for a few minutes. It's a fascinating test.</p><p>And if the Tensilon test is positive (ie you suddenly feel good for a few minutes) then it means you're going to be given some pills to take regularly. There are some side effects, but if you follow directions you should be vastly better off than you have been with some of the other things you've been on.</p><p></p><p>mother in law has MG. She's had it since she was in her teens. Very slowly progressive, in her. It's very treatable, very manageable. </p><p></p><p>Don't get me wrong, but I do hope they find it's MG. The only better news would be for you to wake up in the morning completely well again, with a written guarantee on the pillow saying you will never be sick again.</p><p></p><p>Let us know how you g et on.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 100873, member: 1991"] Hang in there, Linda. I hope the neuro decides to go conservative for a while. I agree, too many people sampling bits isn't always helpful. But don't be too upset by symptomatic treatment - sometimes it's the best policy, even when you know what the problem is. It's symptomatic treatment that has done the best for me. If it's myasthenia, it can be hard to diagnose for sure (a blood test for AcCh receptor antibodies should be done, but it does sometimes come back negative) but a Tensilon test should be fast and definitive. It IS something for a neuro to do. I've never had a Tensilon test, they have never been sufficiently suspicious of MG to do it to me. The effect of it if you DON'T need it - it can affect your heart rate for a few minutes, slow it down. I'm not sure on that one, it's such a short-acting test it may have absolutely no effect on the heart. But if you DO need it - you will suddenly feel alive, energised, strong - but only for a few minutes. It's a fascinating test. And if the Tensilon test is positive (ie you suddenly feel good for a few minutes) then it means you're going to be given some pills to take regularly. There are some side effects, but if you follow directions you should be vastly better off than you have been with some of the other things you've been on. mother in law has MG. She's had it since she was in her teens. Very slowly progressive, in her. It's very treatable, very manageable. Don't get me wrong, but I do hope they find it's MG. The only better news would be for you to wake up in the morning completely well again, with a written guarantee on the pillow saying you will never be sick again. Let us know how you g et on. Marg [/QUOTE]
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