Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
I think I may have gotten my girl back from...
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="svengandhi" data-source="post: 413078" data-attributes="member: 3493"><p>My oldest boy does have PANDAS (confirmed by testing at NIMH years ago). He NEVER had a pus-filled throat when he had an episode. Typically, he would get very whiny and clingy and just not himself. He would also get very Obsessive Compulsive Disorder (OCD)-like behaviors - imagine a first grade boy washing his hands 39 times in a row and crying because even though mommy washed her hands after changing easy child's diaper, Mommy did not BLEACH her hands or the baby's bottom. Put him amoxi and within 2 days, he's back to normal.</p><p></p><p>We used to microwave his toothbrush and then put it in the dishwasher after he was on amoxi for 2 days. For three winters, we kept him on amoxi prophylatically - 1 low dose pill a day and it reduced his episodes. </p><p></p><p>After 2nd grade, we had his tonsils removed at the rec of difficult child's ENT and that helped even more. The doctor diagnosis'ed him with tonsilitis because insurance wouldn't cover removal of tonsils to treat strep but after he read all the stuff we showed him on PANDAS, he felt that it would help and he was right. Does Duckie have tonsils? We didn't have his adenoids removed, though we did have difficult child's (though not HIS tonsils).</p><p></p><p>For years, our pediatrician would call in amoxi if we asked for it. He died last year but oldest boy is in his 20's now and seems to have outgrown PANDAS. By the way, we gave every teacher and school nurse a heads up at the beginning of every year and asked for a call home if any kid in his class or grade (common lunch and recess) was diagnosis'ed with strep.</p><p></p><p>Good luck.</p></blockquote><p></p>
[QUOTE="svengandhi, post: 413078, member: 3493"] My oldest boy does have PANDAS (confirmed by testing at NIMH years ago). He NEVER had a pus-filled throat when he had an episode. Typically, he would get very whiny and clingy and just not himself. He would also get very Obsessive Compulsive Disorder (OCD)-like behaviors - imagine a first grade boy washing his hands 39 times in a row and crying because even though mommy washed her hands after changing easy child's diaper, Mommy did not BLEACH her hands or the baby's bottom. Put him amoxi and within 2 days, he's back to normal. We used to microwave his toothbrush and then put it in the dishwasher after he was on amoxi for 2 days. For three winters, we kept him on amoxi prophylatically - 1 low dose pill a day and it reduced his episodes. After 2nd grade, we had his tonsils removed at the rec of difficult child's ENT and that helped even more. The doctor diagnosis'ed him with tonsilitis because insurance wouldn't cover removal of tonsils to treat strep but after he read all the stuff we showed him on PANDAS, he felt that it would help and he was right. Does Duckie have tonsils? We didn't have his adenoids removed, though we did have difficult child's (though not HIS tonsils). For years, our pediatrician would call in amoxi if we asked for it. He died last year but oldest boy is in his 20's now and seems to have outgrown PANDAS. By the way, we gave every teacher and school nurse a heads up at the beginning of every year and asked for a call home if any kid in his class or grade (common lunch and recess) was diagnosis'ed with strep. Good luck. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
I think I may have gotten my girl back from...
Top