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If I hear this one more time......
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<blockquote data-quote="flutterbee" data-source="post: 247714"><p>I, too, get tired of being told how strong I am. Like you, Linda, I'm faking it most of the time these days.</p><p></p><p>I cringe when my son says, "Yeah, but you're disabled. You can't help it." Don't get me wrong, I'm happy that he understands my limitations and helps out as much as he does. But, it makes me feel so...inadequate.</p><p></p><p>I, too, want to scream when someone says my daughter is being typical teen. There is not much typical about her. </p><p></p><p>And if my mom asks me what time I got up again, I'm going to lose my mind. I'm doing the sleeping thing again. "What time did you get up?" Around 2:00. "Oh, you're going to be up all night." No, actually, I'll make it for another 3 hours or so (if I'm lucky) and then I'll be asleep again. I. cannot. stay. awake. I will fall asleep sitting up - something I never used to do. We have this conversation almost every day. (I know I've mentioned this one before. Several times.)</p><p></p><p>The new one is....</p><p></p><p>Me: I'm freezing. I'm running another fever.</p><p>Mom: Have you been taking vicodin?</p><p>Me: No. The pain hasn't been that bad. And even if it were, I'm not awake enough to need it.</p><p>Mom: Well, maybe you're so cold because you're withdrawing from vicodin.</p><p>Me: No. I actually took my temperature. I have a fever. </p><p></p><p>You know, the fever that accompanies every flare? The fever that I run at least a week out of every month?</p><p></p><p>In case you couldn't tell, I'm having a rotten month and am at my limit and pretty much *everything* is making me want to scream.</p><p></p><p>Maybe I should just scream anyway. Might make me feel better.</p><p></p><p>Care to join me, Linda?</p></blockquote><p></p>
[QUOTE="flutterbee, post: 247714"] I, too, get tired of being told how strong I am. Like you, Linda, I'm faking it most of the time these days. I cringe when my son says, "Yeah, but you're disabled. You can't help it." Don't get me wrong, I'm happy that he understands my limitations and helps out as much as he does. But, it makes me feel so...inadequate. I, too, want to scream when someone says my daughter is being typical teen. There is not much typical about her. And if my mom asks me what time I got up again, I'm going to lose my mind. I'm doing the sleeping thing again. "What time did you get up?" Around 2:00. "Oh, you're going to be up all night." No, actually, I'll make it for another 3 hours or so (if I'm lucky) and then I'll be asleep again. I. cannot. stay. awake. I will fall asleep sitting up - something I never used to do. We have this conversation almost every day. (I know I've mentioned this one before. Several times.) The new one is.... Me: I'm freezing. I'm running another fever. Mom: Have you been taking vicodin? Me: No. The pain hasn't been that bad. And even if it were, I'm not awake enough to need it. Mom: Well, maybe you're so cold because you're withdrawing from vicodin. Me: No. I actually took my temperature. I have a fever. You know, the fever that accompanies every flare? The fever that I run at least a week out of every month? In case you couldn't tell, I'm having a rotten month and am at my limit and pretty much *everything* is making me want to scream. Maybe I should just scream anyway. Might make me feel better. Care to join me, Linda? [/QUOTE]
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