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General Parenting
In a bit of a shock after the EEG....
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<blockquote data-quote="buddy" data-source="post: 504311" data-attributes="member: 12886"><p>OH HONEY!!! As one who has lived the worst possible scenario I quadrupedal the not getting too upset suggestion. Most electrical abnormalities are just that, abnormal electric activity....maybe rising to seizure level. It IS frustrating they let this go on. But many kids with autism have seizures. And they are able to help with them in most cases, and you will cross that bridge when you come to it. I know you would NEVER accept no MRI so dont even worry that the neuro would suggest that. You make it clear that if there ever were to have further issues and he/she missed it you would be coming for them IF they say no mri is necessary. And, do a full mri, they may want a contrast one and there are different levels so it is right, best to have the neuro order it. Q's seizures start on one side and go to another.... so just doing an mri in the area of the electrical issue is not enough... need to check the whole thing out and it gives peace of mind and a baseline for future issues doing this too. Once under the test, do it all. </p><p></p><p>I don't know if you remember, but I had been referred to adopt Q before they found his brain mass. I only knew he had seizures and some delays. His neuro had refused to do an MRI (foster child, low income for him kind of kid right??) and who was there to advocate for that??? Foster mom tried over and over but she had no authority. Finally the school backed her up and social services caved. They got a new neuro who ordered a CAT scan immediately...(I know now that an MRI would have been better earlier on but for him by that time a CAT scan said it all quickly) Your son has you as an advocate so that kind of miss is not going to happen.</p><p></p><p>This is frustrating and great news in that strange sense. Can also explain why he suddenly changes moods on you. </p><p></p><p></p><p></p><p></p><p>Extra electrical activity even if it is just that, (not seizures) can zing those areas around where it is being picked up on the eeg..... so it helps to understand why he may have on and off difficulties, no one can say.. oh he knows better or he can do it if he tries harder... so this is really helpful. </p><p></p><p>For now Breathe and help difficult child to be calm and not worry. It is great to let him know that the doctors are helping him to feel better though. That was reassuring for Q. </p><p></p><p>Impossible for YOU to not worry, but keep it in perspective.... odds are on your side.</p><p></p><p>LOVE AND HUGS, Dee</p></blockquote><p></p>
[QUOTE="buddy, post: 504311, member: 12886"] OH HONEY!!! As one who has lived the worst possible scenario I quadrupedal the not getting too upset suggestion. Most electrical abnormalities are just that, abnormal electric activity....maybe rising to seizure level. It IS frustrating they let this go on. But many kids with autism have seizures. And they are able to help with them in most cases, and you will cross that bridge when you come to it. I know you would NEVER accept no MRI so dont even worry that the neuro would suggest that. You make it clear that if there ever were to have further issues and he/she missed it you would be coming for them IF they say no mri is necessary. And, do a full mri, they may want a contrast one and there are different levels so it is right, best to have the neuro order it. Q's seizures start on one side and go to another.... so just doing an mri in the area of the electrical issue is not enough... need to check the whole thing out and it gives peace of mind and a baseline for future issues doing this too. Once under the test, do it all. I don't know if you remember, but I had been referred to adopt Q before they found his brain mass. I only knew he had seizures and some delays. His neuro had refused to do an MRI (foster child, low income for him kind of kid right??) and who was there to advocate for that??? Foster mom tried over and over but she had no authority. Finally the school backed her up and social services caved. They got a new neuro who ordered a CAT scan immediately...(I know now that an MRI would have been better earlier on but for him by that time a CAT scan said it all quickly) Your son has you as an advocate so that kind of miss is not going to happen. This is frustrating and great news in that strange sense. Can also explain why he suddenly changes moods on you. Extra electrical activity even if it is just that, (not seizures) can zing those areas around where it is being picked up on the eeg..... so it helps to understand why he may have on and off difficulties, no one can say.. oh he knows better or he can do it if he tries harder... so this is really helpful. For now Breathe and help difficult child to be calm and not worry. It is great to let him know that the doctors are helping him to feel better though. That was reassuring for Q. Impossible for YOU to not worry, but keep it in perspective.... odds are on your side. LOVE AND HUGS, Dee [/QUOTE]
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In a bit of a shock after the EEG....
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