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It's 3am, difficult child has been up since 1am
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<blockquote data-quote="maxeygirls" data-source="post: 337051" data-attributes="member: 8869"><p>Janet,</p><p>Throwing thoughts is always great, usually it helps and nobody gets hurt, unlike throwing Legos. </p><p>Unfortunately difficult child was given only one dose of dimeatapp(sp) and it did nothing so I didn't continue it. The sleep problems were progressing before she got sick so it has just continued to decline. It seems like every time we think we have her stable it only lasts a month or so. She makes great progress but then slides slowly before falling off the cliff. </p><p>She takes her medications at 8am-8:30am, then again half an hour before bedtime. It seems to make no difference. I'm really not happy with her on these medications but they truly say we have no other options with her age. </p><p>Today she is walking around in a fit of rage, forced energy and spastic outbursts with one eye open. easy child and I are watching her warily with sleep-deprived eyes and wondering what piece of furniture will fly before dinner time tonight. Poor little easy child at such a young age recognizes difficult child's bad days and crawls off to a remote location to play quietly on days like these. Babies truly are amazing. </p><p>A bit of good news though, difficult child's Gigi (my mother) just called to tell me they have rescheduled their "introduce difficult child to snow" trip that they had cancelled due to Gigi being incredibly ill and they are taking her with them for a few days so that easy child and I can rest before driving up. It's a month away. I can survive till then, I hope. Gigi is kind of my difficult child mama. She was diagnosed with Rheumatoid Arthiritis at 24 and is now in her 60's with osteo perosis and enough fake joints to make TSA wary when she approaches them. But she loves difficult child and will do anything she can for her. Im so glad she has finally embraced the diagnosis instead of fighting it tooth and nail and sending difficult child into a tail spin. Bapa (my dad) is getting there. We almost lost him to TEN two years ago and he is still recovering so you can see how hard it is for them to provide any relief for us.</p></blockquote><p></p>
[QUOTE="maxeygirls, post: 337051, member: 8869"] Janet, Throwing thoughts is always great, usually it helps and nobody gets hurt, unlike throwing Legos. Unfortunately difficult child was given only one dose of dimeatapp(sp) and it did nothing so I didn't continue it. The sleep problems were progressing before she got sick so it has just continued to decline. It seems like every time we think we have her stable it only lasts a month or so. She makes great progress but then slides slowly before falling off the cliff. She takes her medications at 8am-8:30am, then again half an hour before bedtime. It seems to make no difference. I'm really not happy with her on these medications but they truly say we have no other options with her age. Today she is walking around in a fit of rage, forced energy and spastic outbursts with one eye open. easy child and I are watching her warily with sleep-deprived eyes and wondering what piece of furniture will fly before dinner time tonight. Poor little easy child at such a young age recognizes difficult child's bad days and crawls off to a remote location to play quietly on days like these. Babies truly are amazing. A bit of good news though, difficult child's Gigi (my mother) just called to tell me they have rescheduled their "introduce difficult child to snow" trip that they had cancelled due to Gigi being incredibly ill and they are taking her with them for a few days so that easy child and I can rest before driving up. It's a month away. I can survive till then, I hope. Gigi is kind of my difficult child mama. She was diagnosed with Rheumatoid Arthiritis at 24 and is now in her 60's with osteo perosis and enough fake joints to make TSA wary when she approaches them. But she loves difficult child and will do anything she can for her. Im so glad she has finally embraced the diagnosis instead of fighting it tooth and nail and sending difficult child into a tail spin. Bapa (my dad) is getting there. We almost lost him to TEN two years ago and he is still recovering so you can see how hard it is for them to provide any relief for us. [/QUOTE]
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