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General Parenting
it's official: Autism Spectrum Disorders (ASD) diagnosis for V
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<blockquote data-quote="Ktllc" data-source="post: 555592" data-attributes="member: 11847"><p>I had to edit my post: I used V's real name!</p><p>I don't know how I feel, to be honest. Worried about the future? Releaved because we'll have access to more help? Is it real??</p><p>Right now: he has a Pervasive Developmental Disorder (PDD)-not otherwise specified diagnosis and they are thinking there might be a genetic component. They are not sure about the genetic part, but some facial features made them think about William syndrome. The team said we maybe should see a genetician if we want to be sure. William syndrome comes with heart problems but V has no diagnosis heart issues... I will google it and probably talk with his pediatrician. </p><p>I will receive a written report in a few weeks. They gave me a bunch of resources I can use for V. </p><p>They think it is very important we work on his auditory issues and keep a close eye on his school progress. As soon as he starts falling behind: we need to test for specific learning disability.</p><p>They are hoping that V will stay at Pervasive Developmental Disorder (PDD)-not otherwise specified with the help of therapy. But they did tell me that the gap might get bigger as he grow older and might end-up with high functioning autism. They see it a lot with kids like V who are diagnosis at a young age. We will re-evaluate in a few years as he will now be their client for life.</p><p>When of his asset: he uses and understands facial expressions (at least on paper). it did not come easy, but he passed the test.</p><p>His main weakness: he is a VERY concrete thinker. So we have to keep it in mind as we try to teach him new skills. He is also very rigid in his thinking and routine.</p><p>He showed some big issues in what involved theory of mind. And it was all normed tests which compared him to what a typical 5 year old should understand. This explains why it is so hard for him to understand people and the world in general.</p><p>He is atypical looking but definetely on the spectrum. </p><p>They recommended a 504 plan for now as school is not much of an issue. But we need to get all those accomodation documented and in writing. </p><p>I'm sure I'm forgetting a lot, but I'm going to try to give myself a break.</p><p>I have been fighting for 5 years. The fight is not over but I wont have to do it in the dark anymore.</p><p>I thank you all so much for giving me the strength, believing me and guiding me through all of it.</p><p>You have been my biggest asset and give you all the biggest hug!</p><p>We are heading to the mountain tomorrow and the kids will go on there first train ride! The train is taking us to a pumpkin patch and lots of treats. Some normalcy will do us good.</p><p>I love you all.</p></blockquote><p></p>
[QUOTE="Ktllc, post: 555592, member: 11847"] I had to edit my post: I used V's real name! I don't know how I feel, to be honest. Worried about the future? Releaved because we'll have access to more help? Is it real?? Right now: he has a Pervasive Developmental Disorder (PDD)-not otherwise specified diagnosis and they are thinking there might be a genetic component. They are not sure about the genetic part, but some facial features made them think about William syndrome. The team said we maybe should see a genetician if we want to be sure. William syndrome comes with heart problems but V has no diagnosis heart issues... I will google it and probably talk with his pediatrician. I will receive a written report in a few weeks. They gave me a bunch of resources I can use for V. They think it is very important we work on his auditory issues and keep a close eye on his school progress. As soon as he starts falling behind: we need to test for specific learning disability. They are hoping that V will stay at Pervasive Developmental Disorder (PDD)-not otherwise specified with the help of therapy. But they did tell me that the gap might get bigger as he grow older and might end-up with high functioning autism. They see it a lot with kids like V who are diagnosis at a young age. We will re-evaluate in a few years as he will now be their client for life. When of his asset: he uses and understands facial expressions (at least on paper). it did not come easy, but he passed the test. His main weakness: he is a VERY concrete thinker. So we have to keep it in mind as we try to teach him new skills. He is also very rigid in his thinking and routine. He showed some big issues in what involved theory of mind. And it was all normed tests which compared him to what a typical 5 year old should understand. This explains why it is so hard for him to understand people and the world in general. He is atypical looking but definetely on the spectrum. They recommended a 504 plan for now as school is not much of an issue. But we need to get all those accomodation documented and in writing. I'm sure I'm forgetting a lot, but I'm going to try to give myself a break. I have been fighting for 5 years. The fight is not over but I wont have to do it in the dark anymore. I thank you all so much for giving me the strength, believing me and guiding me through all of it. You have been my biggest asset and give you all the biggest hug! We are heading to the mountain tomorrow and the kids will go on there first train ride! The train is taking us to a pumpkin patch and lots of treats. Some normalcy will do us good. I love you all. [/QUOTE]
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it's official: Autism Spectrum Disorders (ASD) diagnosis for V
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