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Just generally losing it...
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<blockquote data-quote="slsh" data-source="post: 119961" data-attributes="member: 8"><p>Hi and welcome - so very glad you found us!</p><p> </p><p>Wow. You certainly have been through the wringer and then some. First off, please be gentle to yourself. This is a safe place to vent and you will receive tons of support. Do not feel guilty for feeling boxed in and frustrated. I think that's at the very least a normal feeling. I read an interesting blog several months ago talking about the concept of the "martyr mother", moms who take care of children with disabilities who insist that it's not a huge strain. Now, I've always been one of those moms and I truly don't see it as a huge strain.... most of the time. But there are times when it's a bit more than challenging and there are moments when I want to throw myself on the floor and pitch the biggest difficult child-like fit ever about how unfair it all is - to my 2 sons with disabilties, to my 2 kids without disabilities, to me and husband, just in general. I think that makes me human because quite frankly, having a sick kid and having all the perqs that come with it (hospital bills, time constraints, severe limitations on even being able to do "normal" family activities, etc.) is the absolute pits sometimes. Yes, your son is sick. But I think it's healthy for you to gripe about it and griping *doesn't* make you a bad mother. It sounds like you have done a truly phenomenal job of holding your family together under the worst possible set of circumstances. Give yourself the much due credit and allow yourself some private moments of "oh my gosh, how did we get here??".</p><p> </p><p>I can only suggest taking it one day at a time - one minute at a time on those really *really* rotten days. I would try to get the ball rolling to get ex to at least step up financially. I also wonder if difficult child might qualify for SSI/Medicaid during his treatment? Might be worth looking into. </p><p> </p><p>Glad you found us!</p></blockquote><p></p>
[QUOTE="slsh, post: 119961, member: 8"] Hi and welcome - so very glad you found us! Wow. You certainly have been through the wringer and then some. First off, please be gentle to yourself. This is a safe place to vent and you will receive tons of support. Do not feel guilty for feeling boxed in and frustrated. I think that's at the very least a normal feeling. I read an interesting blog several months ago talking about the concept of the "martyr mother", moms who take care of children with disabilities who insist that it's not a huge strain. Now, I've always been one of those moms and I truly don't see it as a huge strain.... most of the time. But there are times when it's a bit more than challenging and there are moments when I want to throw myself on the floor and pitch the biggest difficult child-like fit ever about how unfair it all is - to my 2 sons with disabilties, to my 2 kids without disabilities, to me and husband, just in general. I think that makes me human because quite frankly, having a sick kid and having all the perqs that come with it (hospital bills, time constraints, severe limitations on even being able to do "normal" family activities, etc.) is the absolute pits sometimes. Yes, your son is sick. But I think it's healthy for you to gripe about it and griping *doesn't* make you a bad mother. It sounds like you have done a truly phenomenal job of holding your family together under the worst possible set of circumstances. Give yourself the much due credit and allow yourself some private moments of "oh my gosh, how did we get here??". I can only suggest taking it one day at a time - one minute at a time on those really *really* rotten days. I would try to get the ball rolling to get ex to at least step up financially. I also wonder if difficult child might qualify for SSI/Medicaid during his treatment? Might be worth looking into. Glad you found us! [/QUOTE]
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