Lisa... {{hugs}}
No advice, really, but... when we went through years and years and years of trying to get help, and I kept getting more and more in a corner because way too much time had already gone by and... at what point is it too late? An old connection, now working at the premier early-childhood intervention centre for kids with Autism Spectrum Disorders (ASD) here, told me:
"It is NEVER too late... and sometimes too soon."
Used to be that they believed that if some things were not caught by age 2, or age 5, or whatever... that it was "too late"... but over and over again, they are proving that there IS time... time to get the diagnosis, time for the parent to work through this whole thing psychologically, time to turn things around...
Yes, he is 2. Yes, the pediatrician may be saying he's hitting the milestones when the kid is consistently doing so at the absolutely last possible minute (been there done that with-o Autism Spectrum Disorders (ASD)...). But... because Occupational Therapist (OT), "12 years too late", and SLT "10 years too late" are having a massive impact on a kid almost old enough to drive, because parent-only gut-feel intervention had enough impact to make a major difference, ... I'm starting to understand.
Just keep doing what you're doing. It won't take THAT long, and someone else will clue in, or easy child will clue in. Meanwhile, you're bridging the gap far better than you know.
Very interesting point about heart rate during labour... difficult child's dipped "just slightly" (per the obgyn at the time), but enough that they wanted me on oxygen... and I've always wondered if that wasn't one of the factors in difficult child's problems, but every doctor has always said not a chance...
