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Lots of ? about 4 yo DS. LONG post, sorry
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<blockquote data-quote="shutterbunny" data-source="post: 31472" data-attributes="member: 3568"><p>Totoro,</p><p></p><p>Thanks for you input, I really appreciate it. Well, I talked to the neuropsychologist today and he said increase to 4mg if we wanted, or if that worried us, go to 3mg instead. We're contemplating until tomorrow morning. </p><p></p><p>Our son had the fatigue from the abilify, but that eased after a week...first week, he would be wiped 3.5-4 hours after he got his dose and sleep for an hour...I mean SLEEP, if we didn't wake him for preschool, he'd have slept for hours on end, I am sure. We went through this with the depakote, so it didn't really surprise us, however, he seemed to shake this particular side effect much faster than he did with the depakote. I'm guessing we'll see it again if we increase for at least a week...if it doesn't subside, I'm sure we will consider pm dosing as well. </p><p></p><p>The cost of his two medications are what is killing us, but we'll do what we have to do if it makes him feel like a kid. I got a call from the head of the county cpse program...this used to be the really dreaded call...the preschool teacher was a bad call, but I had grown used to them. As it is a cpse class, it isn't as if they can "kick him out." Maybe move him to a more restrictive program, but not as him to leave as he is there due to behavior. But, when the head of the county program calls, it is never good...except for today. She called to tell me that she'd been in his class twice this week and he seems like a completely new child. She said she was so happy for him (because he seems at ease and happier than he used to be) and she was thrilled for us because she's been crossing her fingers for something to work for us. She would always tell me how she wanted something to work for us so we could understand what it meant to be a happy family (we were always happy, just stressed, tired, frightened and happy) and since we have no other children and he'd been like this basically since birth with no help from anyone we took him to, she felt we were really missing out. I do kind of think, hey, I wish I had "this kid" years ago...this is fun, and happy, and amazing. I always knew he was an amazing child, but I could never relax...I've been able to relax in the past couple of weeks--my husband and I have enjoyed being a family and we've been happier with each other...amazing how the calm just helped our marriage seem better as well...but I am on a tangent here...anyway, it was the first time I got a call from someone in the school system that wasn't to tell me that we had to figure out something, go to a different/new specialist, get new help, try something different, look at a different school, etc...this was a call to tell me that they see a little boy who is amazing and funny and really smart...and that's it...usually we'd hear amazing and funny and really smart and then the dreaded "but" would come in to play, but this time no "but." It was AWESOME :smile:</p><p></p><p>So, I will have to watch for bad side effects...I do think we see some bouncing off the wall times but I can't figure out if it is him just having the same amount of energy that he always had and now he's channeling it into being happy or if we're seeing some mania or what...we'll have to keep a very close eye on him.</p><p></p><p>As for your thoughts of "what if we'd started looking for help sooner." DON'T GO THERE! I could tell you a thousand stories (as I'm sure every mom/dad here could do as well) but the fact that we're finding help means we're doing the right thing. </p><p></p><p>Again, thanks for your help.</p></blockquote><p></p>
[QUOTE="shutterbunny, post: 31472, member: 3568"] Totoro, Thanks for you input, I really appreciate it. Well, I talked to the neuropsychologist today and he said increase to 4mg if we wanted, or if that worried us, go to 3mg instead. We're contemplating until tomorrow morning. Our son had the fatigue from the abilify, but that eased after a week...first week, he would be wiped 3.5-4 hours after he got his dose and sleep for an hour...I mean SLEEP, if we didn't wake him for preschool, he'd have slept for hours on end, I am sure. We went through this with the depakote, so it didn't really surprise us, however, he seemed to shake this particular side effect much faster than he did with the depakote. I'm guessing we'll see it again if we increase for at least a week...if it doesn't subside, I'm sure we will consider pm dosing as well. The cost of his two medications are what is killing us, but we'll do what we have to do if it makes him feel like a kid. I got a call from the head of the county cpse program...this used to be the really dreaded call...the preschool teacher was a bad call, but I had grown used to them. As it is a cpse class, it isn't as if they can "kick him out." Maybe move him to a more restrictive program, but not as him to leave as he is there due to behavior. But, when the head of the county program calls, it is never good...except for today. She called to tell me that she'd been in his class twice this week and he seems like a completely new child. She said she was so happy for him (because he seems at ease and happier than he used to be) and she was thrilled for us because she's been crossing her fingers for something to work for us. She would always tell me how she wanted something to work for us so we could understand what it meant to be a happy family (we were always happy, just stressed, tired, frightened and happy) and since we have no other children and he'd been like this basically since birth with no help from anyone we took him to, she felt we were really missing out. I do kind of think, hey, I wish I had "this kid" years ago...this is fun, and happy, and amazing. I always knew he was an amazing child, but I could never relax...I've been able to relax in the past couple of weeks--my husband and I have enjoyed being a family and we've been happier with each other...amazing how the calm just helped our marriage seem better as well...but I am on a tangent here...anyway, it was the first time I got a call from someone in the school system that wasn't to tell me that we had to figure out something, go to a different/new specialist, get new help, try something different, look at a different school, etc...this was a call to tell me that they see a little boy who is amazing and funny and really smart...and that's it...usually we'd hear amazing and funny and really smart and then the dreaded "but" would come in to play, but this time no "but." It was AWESOME [img]:smile:[/img] So, I will have to watch for bad side effects...I do think we see some bouncing off the wall times but I can't figure out if it is him just having the same amount of energy that he always had and now he's channeling it into being happy or if we're seeing some mania or what...we'll have to keep a very close eye on him. As for your thoughts of "what if we'd started looking for help sooner." DON'T GO THERE! I could tell you a thousand stories (as I'm sure every mom/dad here could do as well) but the fact that we're finding help means we're doing the right thing. Again, thanks for your help. [/QUOTE]
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